Hi,
I don't think too many people understand just what the nerve systems do for us. Simply put they are the wiring between a keyboard and the motherboard. Without it or corrupted all manner of screwball things can happen, totally out of our control. When It gets bad it often becomes a permanent feature of our system. I struggled to remember how to speak last week. Fortunately for me a very short term computer glitch! But none the less it refocuses my attention to what a task I have to deal with.
I knew a friend who had to have monthly infusions to try to get the nerves working each month. He had no sensation in his limbs and was restricted from a lot of activities because of it, driving in particular where he could not determine how much pressure was required to accelerate or brake. At the time I paid it no heed, but in hindsight I realise just what hell it must have been for him.
Everybody thinks I crazy to want death but frankly when it gets bad that is the only solution if it doesn't happen through ANS. Thankfully I understand that keeping myself as busy as I can diverts the mind not allowing it time to contemplate the shortcomings of my disease.
This is not a disease for the faint hearted but surely it is one for my enemies! If I had any.
Cheers