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Replies to "I'm getting Arikayce or a placebo, as part of a study of Arikayce with patients newly..."
MAC & Bronchiectasis | Last Active: Oct 14 7:37am | Replies (15)
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I'm getting Arikayce or a placebo, as part of a study of Arikayce with patients newly diagnosed with MAC/NTM. I have not been treated before this. I don't know about others on this thread.
Replies to "I'm getting Arikayce or a placebo, as part of a study of Arikayce with patients newly..."
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I agree with the study. I wasted almost 2 years on the Big 3, and didn't do anything for me. I have 2 lesions / cavities. After starting the Arikayce...so far, my last CT scan showed shrinkage of my cavity. In hindsight, I wish I started with the Arikayce from the beginning. I still question why they want me to continue with the antibiotics that did nothing for me, along with the Arikayce. But I am reluctantly following the protocol.