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PMR Diagnosis - Doctor not listening?

Polymyalgia Rheumatica (PMR) | Last Active: Oct 12 6:13pm | Replies (8)

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@loyd1957

My internist did listen to a point and ran test for polymyositis and since numbers were normal in C-reactive protein and creatine kinase he thought rather my autoimmune Hashimoto's. We have run RA bloodwork and always within normal range. I am at wits end on painful muscles in and around hips, back, butt, shoulders, thighs and calves. Almost feels weak. I should probably see if he would be open to Rheumatologist. Thank you

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Replies to "My internist did listen to a point and ran test for polymyositis and since numbers were..."

Hi @loyd1957, I had symptoms of PMR for 6 months, basically incredible pain and stiffness from the neck down, but my inflammation markers weren't high enough for my PCP to diagnose it. I didn't get diagnosed for another nine months. By then I had Giant Cell Arteritis. I remember being so weak and ridden with pain I couldn't push down the water handles of a sink in a public restroom.
PMR is very responsive to prednisone. In a medical textbook (Goldman &Cecil) a trial dosage of prednisone is suggested if the physician isn't sure about PMR. If there's sympotomatic relief, it's most likely PMR. Maybe you could ask your doctor to prescribe prednisone at the usual dosage for PMR (usually 20 mgs) on a trial basis.
I wish you the best. The pain of PMR is not like any other pain I experienced in my life.