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Let's talk lifestyle and cancer remission

Gynecologic Cancers | Last Active: Oct 18 11:04am | Replies (19)

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@denisestlouie

This is still a new reality for me. I was told I had cancer 2 1/2 months ago. Prior to that news I had been working on my health because I was diagnosed with elderly onset of Crohn's disease. I was prescribed a biologic that suppresses the immune system and is outrageously expensive. I had made my mind up that I would find out what caused my Crohn's and control it without the big cannon drugs. Thats when I learned about functional and holistic medicine. I saw 2 holistic Doctors that were also medical doctors. The first one was not a good fit. She couldn't give up the pharmaceutical side of my medicine.

When I got the news about cancer I was in the best health that I had been in for years. The. Crohn's disease was undiagnosed I believe for nearly 15 years. My symptoms were not digestive it was systemic inflammation which was also not identified.

The surgical oncologist believed we found the cancer in its early stage but nope the pathology shows it was advanced but not metastasize outside the representative system. The pathology also identified the cancer I have mixed cell line both are aggressive and rare.

I am just not ready to face my mortality. I'm just not ready. I'm going to do what I can to stay alive and disease free, but I also know I may not be able to influence that and I might be very disappointed someday.

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Replies to "This is still a new reality for me. I was told I had cancer 2 1/2..."

@denisestlouie - Your determination to do everything you can is inspiring. I can understand the difficulty in dealing with the diagnosis - I am coming up on the 1 year anniversary of the cancer diagnosis and it still feels unreal at times. I also have an autoimmune disorder and successfully avoided getting COVID thru the pandemic and was starting to feel like life could be normal again.

Then the symptoms started, many tests with no diagnosis, ending months later with an ambulance ride and hospital admission. I was discharged 3 weeks later after a diagnosis of a rarer form of an aggressive blood cancer and a week of chemotherapy in the hospital.

As someone who spent a career using logic to solve problems, it is a challenge to accept that I may not be able to solve this one. Waiting now to find a bone marrow donor for a transplant so I am learning each day what patience and trust mean. Reading about other people’s experiences and determination motivates me to keep believing. So thanks again for sharing your story.

I too am hoping to post a good result to this journey in the future to give someone else hope. So with all of that shared, please know that I am sending positive thoughts and wishes for your continued remission.
Here’s to happy endings.