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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 hours ago | Replies (584)
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@caregiverx2

Today is Day +49. We are almost half-way home. All of his tests look great except for kidney function today. His hand tremors seem worse and makes eating difficult.

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Replies to "Today is Day +49. We are almost half-way home. All of his tests look great except..."
Lori, Volunteer Mentor | @loribmt | Oct 11 7:59am

Good morning, @caregiverx2! The half-way home mark or, the half-way TO home mark! ☺️ Either way, it’s a small milestone considering the trepidation of those earlier weeks, right? It’s a slow but steady recovery to that second chance at life.

I’m so sorry to see your husband still has the tremors so badly. Has the doctor talked about reducing the tacro? What is your husband’s Tacrolimus trough? I seem to recall that if my trough rose above 7.5 my tremors would worsen considerably. Tacro levels in the body can be affected by other meds, which was usually the culprit in my fluctuating level. Tacro can also impact the kidneys so if your husband’s kidney numbers are off, that might be a consideration.

Wishing him well on the kidney function test today…only good news allowed. ☺️. Thank you for the update! Sending an air-hug!

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