Connect
← Return to Who here have LC so bad they can’t work or hardly leave the house?
Discussion
Who here have LC so bad they can’t work or hardly leave the house?
Post-COVID Recovery & COVID-19 | Last Active: Oct 13 1:13am | Replies (57)Comment receiving replies
Hi!
I'm new here just found this as I research places to get treated. Im pretty sure what I'm experiencing is LC. I had COVID in 2020 and again in 2022 both times really bad. Since the first time in 2020 I've had heart palpatations, rapid heart rate (just walking up my stairs in my house it goes up to 134), increased BP, shortness of breath, body aches and lose my voice, extreme fatigue. I'll get so short of breath just doing normal stuff and my heart rate increases and BP goes up I get exhausted and have to sleep. I'm a therapist and talk all day, it's affecting my ability to do my job anymore, Im exhausted and have no capacity to be attentive. Im worried I'll have to stop but I have to work so I don't know what to do anymore. Ive gone to the ER multiple times and been in the hospital all to be told they have no clue what is wrong with me. Every year the symptoms get worse, I've been sick now for 10 weeks. Im exhausted all the time. I used to run marathons and work out daily now I can hardly walk around my house. We may have to eventually sell the house b/c I cant even get upstairs. 🙁 I'm hoping to get into Mayo clinic's LC but would love to hear other's experiences and recomendations for LC clinics
Replies to "Hi! I'm new here just found this as I research places to get treated. Im pretty..."
I'm so sorry to hear of your struggles I got covid for seven weeks in March of 2020 and stay fatigued and SOB all the time. My blood inflammation markers are high. Lung and heart at only 50% functionality. I don't have the luxury of not working, but I struggle everyday. I wish you all the best in finding some help
Connect
Hi Trish?,
The way you just described how this all came down and how you are feeling, sounds to me exactly like Long Covid. Of course, I am not saying to not go to a Dr and get diagnosed BUT as a lot of us here experience, it’s hard to find one educated enough in LC to say that. At first they were all too scared to use the words or believe that it’s real. My own son was even one to think of it just like a flu that goes away. What area are you in? There are some other facilities and trials going on right now. I too have been to ER I Think 3 times and say they can’t find anything. Now I just had oxygen delivered and can’t work (I loved to work!) and my pain and fatigue make me sometimes not to want to even be here. Yes, it has been worse each month. I had Covid 5 or 6 times. 2020,21, 22, think 23 but not tested and twice in 24. Each making original symptoms worse and adding new ones. Here is some literature you might wish to read. I’m Kelly, BTW. Enjoy chatting. Can’t get out like I used to and really, my fiancé is great at helping me but he really doesn’t understand it. I am not as fun anymore. He makes statement like “when you are better, we can go here”. I’m afraid that may never happen. The “3 MONTHS” of long haulers has now turned into 4 plus years of LC. I don’t see an end in site for this, especially since I keep getting worse!!!