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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)
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@jedge54

I am 72 and was diagnosed with CIDP after my third Pfizer COVID-19 vaccine. There is very little information on the link between CIDP and the COVID-19 vaccine but I'm inclined to think they are related, I've had iViG and heavy doses of methylprednisone(steroids) and neither have helped. I am getting weaker and easily fatigued. Does anyone know of any other treatments that might help me? I am looking at VyVgart Hytrulo as a possibility, but it is $17,00 per dose.
Thank you,
John

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Replies to "I am 72 and was diagnosed with CIDP after my third Pfizer COVID-19 vaccine. There is..."
artemis1886 | @artemis1886 | Oct 12 7:53am

Steroid 150 mg IV
Every 4 hours
2 Benadryl one hour prior to infusion
Tylenol 500 mgs
Wait 30 minutes and I am on Panzyga IVIG
Just an fyi I was told to drink 100 ounces of water day before and 100 ounces the day after to prevent migraines after infusion

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artemis1886 | @artemis1886 | Oct 12 5:32pm

How much IVIG? Mine is 5 days a month. It has gotten rid of my dizziness and balance problems. My left leg was dragging along with drop foot. My left leg is not dragging any more. I am waiting to see how long it takes to work on the motor neuropathy. I have several types of neuropathy plus mine in autoimmune related.

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