← Return to RARE disease caused permanent damage d/t dismissed by Drs for 7 yrs

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@slkanowitz

Artemis, you have such strength to have been through all that, yet are helping people here. You mentioned something that I think I have (not diagnosed yet). The cardiac autonomic problem. I just had a holter monitor with pulse rate 41-110, SVT ( supraventricular tachycardia) and my BP is so labile I have to take it several times a day before I take my BP meds, so I don’t if its too low. I see my cardiologist soon and will ask about that. Many other signs of autonomic dysfunction so why not my heart? We help each other here, and indirectly get to a diagnosis by our own research and suggestions to our doctors. Thank you for your giving efforts and time to help others here! You may have provided my 7th autoimmune diagnosis! Is that emogi a smiley face or frown? Ha!

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Replies to "Artemis, you have such strength to have been through all that, yet are helping people here...."

Some of the things I noticed after just developing the autonomic tachycardia last year, are that being in any heat immediately makes me feel faint with an increase in HR, also interestingly holding arms above my head makes it worse. When I have an infection or flare up I believe it is exacerbated as well.