← Return to New diagnosis of ascending aortic aneurysm and I’m terrified

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@hercules

Hello, thank you for sharing your experience! It gives me hope! I’m happy to hear you are doing well at 79 and have the surgery behind you. Can you tell me if yours was 4.8 when it was discovered or when it was operated on? Monitoring for 14 years seems like a great long time! I’m just newly diagnosed at 3.9 cm and I just turned 52 years old, female. The future looks scary to me from here I’ll be honest. 🙁

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Replies to "Hello, thank you for sharing your experience! It gives me hope! I’m happy to hear you..."

When it was discovered, I was told it was an "enlarged aortic root". Then later yearly imaging it measured 4.6 and gradually creeped up to a 5. I was almost dismissed at first as it got to be 4.9. My doctor said it was no longer the size that mattered but the trajectory of growth. Since I also had a bicuspid valve and people "can live forever with those". So, I went on with my life. I ran, pushed cars thru intersections, lifted, and without precautions. I also had persistent A fib with rates of 130-140. I see a lot of comments on this site warning against all of this.
It wasn't until my aortic valve got sclerotic and I was short of breath and had to sleep sitting up that surgery was offered.
My daughter has the same bicuspid valve but hers is still working just fine. She goes to a very prestigious doctor - in another State-who is monitoring her aneurysm only, and it now measures 5 cm. She is also 52 yrs old. They are waiting for the valve to go bad before surgery. The explanation is to do both repairs with one surgery. I admit, I am more concerned for her growing aneurysm than I was for my own.
I trust you are educating yourself about the causes and contributing factors. Stay alert and informed in the cardiology world. But don't let it scare you. We are fortunate to live in America where we have excellent medical care so readily available. Choose a good cardiology group and trust them. Life your life. Our bodies are tougher than we might think. I send you good vibs.