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MAC & Bronchiectasis | Last Active: Oct 19 8:34pm | Replies (5)

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@sueinmn

@bozziva4 Welcome to Mayo Connect. This support group has a wide variety of experiences with Mycobacteria infections and bronchiectasis. M. chimaera is a fairly recently isolated slow-growing variant of MAC - Mycobacteria Avium Complex and is usually treated with what we refer to in the group as the "big 3" - azithromycin, ethambutol and rifampin.

When you were diagnosed with bronchiectasis, did the pulmonologist recommend daily airway clearance to help remove mucus from your lungs and help keep them free of infection? Quite a few asymptomatic people here have been able to avoid antibiotics with this daily regimen.
Here is a great video about Bronchiectasis and airway clearance by one of the experts:


Here is a good chart explaining the protocol for when to "wait and watch" a case of MAC, and when to treat: https://www.ntminfo.org/wp-content/uploads/2019/06/NTMSupplementalGuide.pdf

Alternative and complementary medicine is used by many of us, along with airway clearance and regular monitoring, to stay healthy, whether or not we choose to treat with antibiotics.

Is your pulmonologist familiar with MAC? Many doctors are not because it is a rare infection, affecting fewer than 1 in 1000 people in this country.

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Replies to "@bozziva4 Welcome to Mayo Connect. This support group has a wide variety of experiences with Mycobacteria..."

Thank you, I don’t seem to have any mucus that I am aware of. Would the pulmonologist teach me how to do that? I appreciate the links.