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Trying to connect with Lichen sclerous and vulvar cancer women.

Gynecologic Cancers | Last Active: Nov 4 3:56pm | Replies (34)
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@sandra1954

Thank you for reaching out I have tried 52 different support groups but none of them can help me with someone who has vulva cancer and I know there are women out there who need this support. I am sorry you are travelling this journey but your dr.should be addressing those little whit spots you have found please let me know how you are doing. Thinking of you sandra

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Replies to "Thank you for reaching out I have tried 52 different support groups but none of them..."
Retired desert dweller | @kellytzoumis | Oct 9 8:53am

I am trying a Breast Cancer Index test on my tumor to determine if I am likely to have a second recurrence. This will determine if I continue in estrogen deprivation with the aromatase inhibitors for more years. Some docs think this impacts my LS while my 2 gynecological docs agree that estrogen has nothing to do with the LS.

Please feel free to contact me on those bad days or moments. I never judge and understand the uncertainty and feelings wondering is this it?

Xxoo k

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