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Have you got Primary Progressive Apraxia of Speech? Let's connect

Brain & Nervous System | Last Active: Nov 7 4:35pm | Replies (45)
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@pattinc

I was diagnosed with PPAOS this month by a neurologist at UNC. I noticed a couple years ago I had trouble speaking some words. I knew the words, but it was hard to say some words. I had a brain MRI a year ago, but nothing showed up to explain the cause. I’ve been doing speech therapy for over a year now. I feel like it helps, but it’s frustrating - I know the words, but it’s hard to say the words.

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Replies to "I was diagnosed with PPAOS this month by a neurologist at UNC. I noticed a couple..."
aoibhin | @aoibhin | Oct 9 10:15pm

I was diagnosed in Sept after 4 years of getting worse.

When I did traditional speech therapy it was frustrating. Didn’t hold my ground much less getting better. Now I speech therapist who specializes in neuro degenerative problems. She has done other things that help me. I know it will get worse over time. It is my brain not the right signals to my mouth. But if I can anything to help, I will do it.

Welcome. We all know this diagnosis feels.

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