Sandra

I would like to be one of those people for you. My LS has not progressed to cancer yet. But I am a breast cancer ER+ recurring cancer patient. And, I just ran into the gynecologist yesterday to check out a new white growth and a little cluster of 3 moles which I don’t remember. And, my gynecologist said I only need to see you 2x a year and I said can I come every 90 days!

So I get the living scan to scan in my breast cancer monitoring, and now LS showed up I check myself daily because I have to moisturize and 2x a week use colbetasol.

I just got snappy with my hubby last night because of the pressure. I have to make a decision on whether to stop my aromatase inhibitors that put me an an estrogen deprived state. Of course, no science available so my docs at Mayo and home disagree on course of action (among and between each group).

Here is something we can relate to-
I HATE it when people say - oh you cured, as if cancer is gone and never will return. Women are happy to ring the breast cancer bell at the centers after radiation. I HATED it.

Once you have cancer, the person has to be vigilant, hyper aware to because we know catching things early has serious consequences.

So, yes I relate to what you are saying. I stay up reading articles, joining support groups, and attending summits. Why? Yes, I am a naturally curious person. But that is only a contributing factor. The real reason is there is very little education by our docs. No brochures in the waiting room, no public service announcements on the tv, and very few nonprofit campaigns for awareness. Yes, there are less occurrences of vulva cancer, but it still needs to be part of our education which should be in the schools and our doctor offices. And in our conversations as mothers with our daughters.

I am here and can relate some, but share LS with you.

🙂 xo