12 yrs of chronic pain, 14 lumbar procedures, new Rx bad!

Posted by deankay @deankay, Aug 4 1:10pm

For reasons no one explains but, the DEA is simply eliminating all Opioids. A simple and easy way to treat the hundreds of abusers by punishing those with true regional chronic pain syndrome. So after 6yrs 10 months of taking hydromorphone 8mg 5XDay, I was able to managed a large portion of lumbar pain for a 6 foot 3 inch guy. Now a problem with a new medication, Buprenorphine and Naloxone 8mg / 2mg. Problems started fast with teeth. I have never had a cavity, crack or gum issues. Now, this film goes under the tongue until it melts. My rear teeth cracked, top & bottom and broke off. Besides severe gas, diarrhea and very marginal lumbar pain help, I was scratching my head. Looking for side effects on reputable websites listed; Teeth decay, back pain, etc. What am I in for in the future? With electrodes in the epidural space, I may not find a Dr. willing to correct the problem as now surgery is extremely invasive. Dr’s have to do this when fusing a vertebrae to and other. So know, it depends on the neurosurgeon’s experience and tolerance for risk associated with open time in the OR. They may pass on my complex problem and show me the door. No one likes serious surgeries, but even fewer want to live with bad pain and a non-existent quality of life.

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@thenazareneshul

No, it's the CDC's old recommendation that cut all our opioids. As a result of doctors then abusing their prescription pads before 2016. What happened (federally) is the CDC published new "guide lines" regarding the issuing of painkillers, for doctors. Some US States started in earlier (saw it all coming) in 2015. That's what happened in Alaska, the very week I was first given a script for hydrocodone at a real pain management clinic, which is the only reason I got any help while they worked on my spine. The CDC has since learned the error of their ways, which was that their action in 2016 scared the living whatever out of all the doctors in the USA. Other nations did the same to their doctors, since then. On Nov 4, 2022, the CDC issued new guidelines because they recognized (after so many deaths by suicide and PM patients turning to illegal drugs) the error of their ways. Of course, they blamed the doctors for taking their "recommendation" as law. It never was law they said, they only issued "guidelines". Yeah, tell that to the graves of all those now gone. The true problem now lies in all the up and coming doctors who have been through medical schools since and beginning in 2016, who were so convinced (brainwashed) that just about everyone can adjust to live "in pain" as if there is no upper limit that can not be adjusted to. We just need to take a few BH classes, right? The rest of us are whiners. I've seen some of the studies done that supposedly prove their (too often just plain sadistic) handling of pain in patients. One's that they can't even read properly, which prove in fact the opposite. It is some of those studies which have caused the CDC to repent. It all came about because of the invention of time released opioids by one family owned pharmacological company. They lied, lied, and then lied some more. Telling the whole healthcare industry in the USA (prior to 2016) how non-addictive it was. See "Painkiller" a TV series (I believe is at Netflix) or The Crime of the Century that's on Hulu, right now. Both tell the story. The problem lies with our medical schools now. Most of the young doctors I've met, and some whole medical systems (Providence/Swedish in Seattle, WA) are still functioning off of the CDC's old 2016 garbage regarding opioids. Still, the truth is, it was the overreaction by almost every MD and DO in the USA to that 2016 set of CDC guidelines that ended up doing this to us. That same kneejerk response to the CDC 2016 "guidelines" also in large is part responsible for many of the deaths that resulted from people then already living on things like fentanyl patches under the supervision of their doctors, who got cut off, and ended up doing heroin, or other illegal drugs. Then dying of that, or just plain killing themselves out of a complete loss of hope in the humanity of our medical professions. The run amok negative peer pressure that so many doctors turned on each other, is also partly to blame. Not least of which was the health networks they worked in, and hospitals they were in staff with. Apparently, the healthcare industry forgot they have drugs for such corrosive paranoia in individuals. China cranking out new and more addictive designer opioids, everyday, and a open southern border to send them into the USA though, is helping no one's pain. The problem is that all our young doctors/providers, and their nurses/assistants, have now already been systematically brainwashed.

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I support your views, I have a morphine pump, It was issued in 2012, thank God, because the level of pain I endured was horrible. I think most times doctors guess at how much pain you are in. Thank you for bringing to light the fact that they were guidelines and not law. Maybe they need to get that message out to the medical community. It is bad enough that insurance companies, think they know what the patient needs and there is no exception. Disease doesn't manifest itself in totally the same way, yet that is the approach insurance takes. Why should doctors and healthcare workers be driven by impersonal treatment models when they issue cookie cutter treatment?

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@bb03

Does anyone know anything about the intracept procedure? I have severe arthritis in lumbar with pinched nerves. RFA’s didn’t work and steroids didn’t work either and after six procedures and 7000 dollars out of pocket and yes I have insurance I’m done with expensive bandaids!

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Find a good ortho surgeon and sounds like you need surgery. I did all that over the course of 20 years and it ended up with surgery with the orthopedic surgeon. It was nothing short of life-changing and me getting my life back. Today they can off put you by sending you in circles without a pocket cost if you’re on Medicare have surgery. The surgeries are so good and the caveat being an excellent orthopedic surgeon.

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I 100 percent understand you. IMO, those meds don't work for real pain. The Opioids are not going away. They want you to believe that. O Meds are the best for the treatment of CRPS or severe chronic pain conditions, I know. I've tried it all since 2007 (after being hit by an A/C truck,) and I had a 3-level ACDF neurosurgery that got worse post-surgery. Now, that past surgery has caused more herniations on adjacent discs. I'm not having more surgery to correct a pain issue, and I don't have faith if my pain gets any worse. I've done the Drill Mills (all the shots/acupuncture, P.T., meds you are on now (I got terrible Lympadema/felt more affected than on O Meds, and still suffered). Yes, it's the same situation with my teeth - previously, I had absolutely beautiful, no braces, perfect teeth UNTIL that med. I went to JacksonvilleDentalSpecialists for a Hybridge - gorgeous result, but it was a challenging process as I couldn't wear the temp ones, which were also great. It's about half of the straight Implant procedures. Dr. Richard Aguila, DDS, MHS, is a great oral surgeon and very friendly; the former Vet and the Prosthodontist for the beauty side of it is Dr. Matthew Nawrocki, DMD, MS. He is a top doctor, and they both are incredibly nice. They don't stick tons of add-on bills to the treatments. I had mine done in 2016, and I've done great. Yes, you can have little issues, and this practice doesn't try to make excessive money on the back end of your Hybridge, which is a company that no one else uses this procedure - yes, others do "teeth in a day" or other methods in/out fast, these are not those doctors; safety is essential, and their practice is stable. I have followed up for cleanings with them, so I know if something wasn't great in all those years since 2016. I have tried so many things to help Chronic Pain; I have been diagnosed with CRPS. I try to make it with the max dose of Tram0d0l (spelled wrong on purpose). I have been on the strong O meds. I'm not about to suffer for what addicts do; if they didn't do O meds, they'd be drinking alcohol or something else. Doctor Patient Forum on Patreon/YouTube is a great site, along with FB. It's a system with rules you must educate yourself on before going down that road. Best to you! Just FYI, I went to a Hybridge doctor in Panama City Beach; that doctor charged so much that I was shocked, so I went back to Jacksonville. Lydia is the $ person who could get you all the information you need.

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You can switch to the Buprenorphine patch. Otherwise known as Butrans. It won’t destroy your teeth. And you’re better off without the Naloxone. You can then use short-acting opioids for break-through pain. You need to be under the care of a pain management doctor now in order to get those needs met. Your regular doctor can’t do it. Best of luck to you, and all of us who suffer with chronic pain.

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@mmalone1804

You can switch to the Buprenorphine patch. Otherwise known as Butrans. It won’t destroy your teeth. And you’re better off without the Naloxone. You can then use short-acting opioids for break-through pain. You need to be under the care of a pain management doctor now in order to get those needs met. Your regular doctor can’t do it. Best of luck to you, and all of us who suffer with chronic pain.

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My GP prescribes oxycodone. It requires a special license to do so.

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