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Post-COVID Neuropathy/Yale paper

Post-COVID Recovery & COVID-19 | Last Active: Oct 11 8:44pm | Replies (53)

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@mlee5309

I don’t think they care enough to use for studies. We’ve been left for dead. I can’t get any doctor to even discuss that my neuropathy is from Covid. I’ve had all the tests everyone gets and then they just assign me a possible syndrome for which nothing can be done. I just can’t believe that people accept this. I know there is nothing we can actually do seeing as Winsantor is using a GoFundme to try to even get phase 3. That drug is never happening. Seems suspicious since I see ads for drugs for the most obscure conditions

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Replies to "I don’t think they care enough to use for studies. We’ve been left for dead. I..."

Yes, I think that they just want us to go away and stop kvetching. It is frustrating and were it not for this group to at least share and be understood, I for one would feel far more alone than I feel. Trying to explain to friends why I "look fine" (well, on Zoom and in person on rare times out) has nothing to do with how I feel. I'll be curious to hear what the post-C specialist has to say on Monday - if he has any new resources for me.