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Pain ever goes away on its own?

Polymyalgia Rheumatica (PMR) | Last Active: Oct 13 10:01pm | Replies (30)

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@lizward46

I am sorry you are feeling so much pain. I have had a similar experience after finally tapering off prednisone after 1 year. It was my hip joints that began to hurt, not at the same level of pain as when PMR was in full swing, but probably a 4 out of 10 on pain scale. I have had a couple of blood tests recently (which I would recommend for you) and my inflammation markers are in the normal range. So where does that leave me. I exercise which helps (walking, yoga, and weight bearing exercise). I am also taking some advil during the day when pain is especially bad. Last night I decided to take a couple of advil before bedtime and I woke up with minimal hip pain. So now maybe I will do that at night if I’m feeling a lot of joint pain. My next rheumatologist appt. is in early Nov. I hope she may have some more answers. My limited reading has told me that it can take at least 6 months for the adrenal glands to get up to speed after being suppressed by prednisone. I was sure hoping that this condition would just “poof” go away after stopping prednisone. So my long winded suggestion to you is to try over the counter pain meds, get blood work done and talk to your doctor. Good luck and hang in there. Liz W

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Replies to "I am sorry you are feeling so much pain. I have had a similar experience after..."

"My limited reading has told me that it can take at least 6 months for the adrenal glands to get up to speed after being suppressed by prednisone. I was sure hoping that this condition would just “poof” go away after stopping prednisone."
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There were many conditions that didn't go poof after stopping prednisone. The common belief is prednisone side effects resolve after stopping prednisone. Things seem to "gradually improve" over time but most of the side effects I experienced didn't disappear in a few days --- maybe many months or a couple of years but not a few days. My endocrinologist said some of the hormone imbalances caused by long term prednisone use may never improve.
https://my.clevelandclinic.org/health/diseases/22673-hormonal-imbalance
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The other problem is the mechanism that causes PMR inflammation in the first place might be triggered again. The risk of another flare of PMR needs some kind of medication as a preventative. I don't think PMR ever burns itself out completely. The immune system develops a "memory" for what it attacks which is detrimental when we have an autoimmune condition. If PMR isn't "flaring up" it is likely to be "smoldering" for a long time.

Did anyone have a Covid shot while tapering?