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DiscussionTrying to connect with Lichen sclerous and vulvar cancer women.
Gynecologic Cancers | Last Active: Nov 4 3:56pm | Replies (34)Comment receiving replies
Replies to "It took two years and I was using clobetasol and t was biopsies every year and..."
Does the cancer have a name? I started out with what doctors thought was LS and treated it on and off over 10 years with clob. Then I finally got biopsied and the result came back EMPD. At first they referred to that as cancer but they have since backed off the word. Not even pre-cancer. Now it’s a “condition.” And the treatments seem to be the opposite. For LS it’s a steroid (clob) and for EMPD, if you go the Aldara route instead of surgery, it’s immunotherapy. Which has its own side effects. None of this is easy, but I’m starting to get a better handle on things. At least you have kept up with biopsies. I’ve learned how important that is! Best of luck!