← Return to I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

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@dadcue

I was listening to my body when prednisone was started. I knew almost immediately that something wasn't okay. My problem was that I was unable to taper off prednisone for more than 12 years.

I have now been on Actemra for more than five years. My body seems to say everything is okay.

I think it is a personal choice whether someone wishes to try a medication or not. I remember being told that prednisone was the devil I knew while Actemra was the devil I didn't know. The advice I received was to stay on prednisone.

My choice was to try Actemra anyway. For me, I now know that Actemra has been a gift from heaven for the last five years at least. I don't know what the future holds. Actemra allowed me to say goodbye to the devil I knew that was prednisone.

If going back on prednisone is the best thing for you, I want to support your decision. People say less than 5 mg of Prednisone is relatively safe.

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Replies to "I was listening to my body when prednisone was started. I knew almost immediately that something..."

I agree with you. Bodies respond differently to the same medicine. Prednisone has never been a big problem for me but from the start ACTEMRA just didn’t feel right. So there you go. It is great however that we gave a choice.

Your lucky. I was put on Actemra and had 2 GCA relapses. Then went to Kevzara Injections which is specifically for PMR which precipitates GCA.