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Trying to connect with Lichen sclerous and vulvar cancer women.

Gynecologic Cancers | Last Active: Nov 4 3:56pm | Replies (34)
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@sandra1954

I started with lichen It turned to cancer. In a few weeks I will be having my third surgery and this time it will be a radical vulvectomy with reconstructed plastic surgery. I can identify with you there are almost no support groups for this and I have spent many days looking for one I too feel very alone. I live in Toronto Canada. And I hope you reply to this

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Replies to "I started with lichen It turned to cancer. In a few weeks I will be having..."
Retired desert dweller | @kellytzoumis | Oct 7 8:11pm

If you are comfortable, how long did it take to go from LS to cancer? I just started and I keep getting reassured that LS rarely goes to cancer and it takes a long time. I also am told that if I use clobetasol twice a week, it should prevent the shift.

There is so little research.

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