Anyone that has had either Shockwave or Softwave Treatment-how many did you have and what was the pricing-just looking into alternative treatments. Thank you!!
Anyone that has had either Shockwave or Softwave Treatment-how many did you have and what was the pricing-just looking into alternative treatments. Thank you!!
I did a series of 10 or 12 treatments at about $1300 package at a chiro/PT office as well as dry needling in my knee and some soft tissue work. The best I can say is maybe it stabilized the nerve symptoms but not enough for me to continue with treatments, unfortunately. I heard from the therapists that shock wave is good for tendonitis and sports injuries.
Anyone that has had either Shockwave or Softwave Treatment-how many did you have and what was the pricing-just looking into alternative treatments. Thank you!!
Hello @queenofjacks, Welcome to Connect. You will notice we changed the title of your discussion to better describe what it is about and hopefully bring in any members with experience. I only have numbness and tingling with my neuropathy and have not tried it. While we wait for members with experience to join the discussion here are a couple of references you might find helpful.
The drs have not said what kind of neuropathy I have-still have one more appt with the rheumatologist; but, none of the other drs have said what kind of neuropathy I have-I was told I had severe neuropathy after all of the other tests run at the Laureate Medical Center here. I'm like everyone else on this website just trying to find a relief from the pain. Now that I was not accepted at Mayo Clinic (my dr sent the referral) because their reply said that they would essentially be running the same tests as Laureate ran and probably have the same conclusion. Please tell me why people go to Mayo for neuropathy if they cannot actually do anything more than tell you that you have neuropathy? I am on the same drugs that alot of the other people are taking; but, with little success! (Pregabalin-Duloxetine.Tramadol, etc) Just looking for alternative treatments and not be scammed again)Shooting pains up to my calves! Do you, personally, have any suggestions?? Thank you!!!
The drs have not said what kind of neuropathy I have-still have one more appt with the rheumatologist; but, none of the other drs have said what kind of neuropathy I have-I was told I had severe neuropathy after all of the other tests run at the Laureate Medical Center here. I'm like everyone else on this website just trying to find a relief from the pain. Now that I was not accepted at Mayo Clinic (my dr sent the referral) because their reply said that they would essentially be running the same tests as Laureate ran and probably have the same conclusion. Please tell me why people go to Mayo for neuropathy if they cannot actually do anything more than tell you that you have neuropathy? I am on the same drugs that alot of the other people are taking; but, with little success! (Pregabalin-Duloxetine.Tramadol, etc) Just looking for alternative treatments and not be scammed again)Shooting pains up to my calves! Do you, personally, have any suggestions?? Thank you!!!
If anyone tells you they have any answers they are lying. There are ZERO anecdotes on any of these forums that I have scoured of anyone finding relief. Everyone tries the same handful of repurposed drugs like tricyclic SSRIs and Gabapentin combined with every supplement known to man including minerals like selenium as if that’s going to make a difference. I’ve taken all that crap and still do and haven’t had any relief from the pain since it began years ago. Two caveats. I have seen anecdotes of people with alcoholic or diabetic neuropathy have success because they can target the cause. Idiopathic is a death sentence without the death.
Hello @queenofjacks, Welcome to Connect. You will notice we changed the title of your discussion to better describe what it is about and hopefully bring in any members with experience. I only have numbness and tingling with my neuropathy and have not tried it. While we wait for members with experience to join the discussion here are a couple of references you might find helpful.
Hi
My feet get very hot especially at night I also suffer from arthritis and experience low grade pain constantly
I found taking Benfotiamine 500mg per day helpful for cooling my feet According to directions you can take up to 1000mg per day
Hi
My feet get very hot especially at night I also suffer from arthritis and experience low grade pain constantly
I found taking Benfotiamine 500mg per day helpful for cooling my feet According to directions you can take up to 1000mg per day
Welcome @macb, It's good to hear you have found something that helps provide relief from your symptoms. I suffer from arthritis along with my neuropathy but I only have numbness and no pain with the neuropathy. I take Thiamine B1 50mg daily along with other supplement to hopefully help slow or stop the progression of my neuropathy. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
There is some research that supports Benfotiamine (B1) as being a piece of helping nerve regeneration.
-- The Role of Neurotropic B Vitamins in Nerve Regeneration https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8294980/
-- Thiamine and benfotiamine: Focus on their therapeutic potential https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10682628/
Have you discussed taking the Benfotiamine and that it's helping with your doctor or care team?
The drs have not said what kind of neuropathy I have-still have one more appt with the rheumatologist; but, none of the other drs have said what kind of neuropathy I have-I was told I had severe neuropathy after all of the other tests run at the Laureate Medical Center here. I'm like everyone else on this website just trying to find a relief from the pain. Now that I was not accepted at Mayo Clinic (my dr sent the referral) because their reply said that they would essentially be running the same tests as Laureate ran and probably have the same conclusion. Please tell me why people go to Mayo for neuropathy if they cannot actually do anything more than tell you that you have neuropathy? I am on the same drugs that alot of the other people are taking; but, with little success! (Pregabalin-Duloxetine.Tramadol, etc) Just looking for alternative treatments and not be scammed again)Shooting pains up to my calves! Do you, personally, have any suggestions?? Thank you!!!
The drs have not said what kind of neuropathy I have-still have one more appt with the rheumatologist; but, none of the other drs have said what kind of neuropathy I have-I was told I had severe neuropathy after all of the other tests run at the Laureate Medical Center here. I'm like everyone else on this website just trying to find a relief from the pain. Now that I was not accepted at Mayo Clinic (my dr sent the referral) because their reply said that they would essentially be running the same tests as Laureate ran and probably have the same conclusion. Please tell me why people go to Mayo for neuropathy if they cannot actually do anything more than tell you that you have neuropathy? I am on the same drugs that alot of the other people are taking; but, with little success! (Pregabalin-Duloxetine.Tramadol, etc) Just looking for alternative treatments and not be scammed again)Shooting pains up to my calves! Do you, personally, have any suggestions?? Thank you!!!
get off the tramadol, opiates are bad for you. I am afraid of permanent dementia using them. I am on ozempic too. I think my neuropathy is from diabetes2. I have sores on my toes that are not healing not even with antibiotics second round. today, I feel pretty good not much muscle strength though, because I took ozempic shot last night. I think some of tihs could be from statin use for 2 years, which is reversible.
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read the red light treatment is not much more than what a heating pad might be.
I did a series of 10 or 12 treatments at about $1300 package at a chiro/PT office as well as dry needling in my knee and some soft tissue work. The best I can say is maybe it stabilized the nerve symptoms but not enough for me to continue with treatments, unfortunately. I heard from the therapists that shock wave is good for tendonitis and sports injuries.
See the comments in this discussion:
- - Shockwave or Softwave Therapy for Neuropathy Pain? https://connect.mayoclinic.org/discussion/neuropathy-treatment/
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1 ReactionThe drs have not said what kind of neuropathy I have-still have one more appt with the rheumatologist; but, none of the other drs have said what kind of neuropathy I have-I was told I had severe neuropathy after all of the other tests run at the Laureate Medical Center here. I'm like everyone else on this website just trying to find a relief from the pain. Now that I was not accepted at Mayo Clinic (my dr sent the referral) because their reply said that they would essentially be running the same tests as Laureate ran and probably have the same conclusion. Please tell me why people go to Mayo for neuropathy if they cannot actually do anything more than tell you that you have neuropathy? I am on the same drugs that alot of the other people are taking; but, with little success! (Pregabalin-Duloxetine.Tramadol, etc) Just looking for alternative treatments and not be scammed again)Shooting pains up to my calves! Do you, personally, have any suggestions?? Thank you!!!
-
Like -
Helpful -
Hug
4 ReactionsIf anyone tells you they have any answers they are lying. There are ZERO anecdotes on any of these forums that I have scoured of anyone finding relief. Everyone tries the same handful of repurposed drugs like tricyclic SSRIs and Gabapentin combined with every supplement known to man including minerals like selenium as if that’s going to make a difference. I’ve taken all that crap and still do and haven’t had any relief from the pain since it began years ago. Two caveats. I have seen anecdotes of people with alcoholic or diabetic neuropathy have success because they can target the cause. Idiopathic is a death sentence without the death.
-
Like -
Helpful -
Hug
1 ReactionHi
My feet get very hot especially at night I also suffer from arthritis and experience low grade pain constantly
I found taking Benfotiamine 500mg per day helpful for cooling my feet According to directions you can take up to 1000mg per day
-
Like -
Helpful -
Hug
1 ReactionWelcome @macb, It's good to hear you have found something that helps provide relief from your symptoms. I suffer from arthritis along with my neuropathy but I only have numbness and no pain with the neuropathy. I take Thiamine B1 50mg daily along with other supplement to hopefully help slow or stop the progression of my neuropathy. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
There is some research that supports Benfotiamine (B1) as being a piece of helping nerve regeneration.
-- The Role of Neurotropic B Vitamins in Nerve Regeneration
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8294980/
-- Thiamine and benfotiamine: Focus on their therapeutic potential
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10682628/
Have you discussed taking the Benfotiamine and that it's helping with your doctor or care team?
@bettyg81pain, Forgive me if I've already shared this with you but the Foundation for Peripheral Neuropathy has a good list of what has helped some people with neuropathy on their website here - Complementary and Alternative Treatments: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
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1 ReactionThank you - I have printed it and will check into each of the suggestions!!
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1 Reactionget off the tramadol, opiates are bad for you. I am afraid of permanent dementia using them. I am on ozempic too. I think my neuropathy is from diabetes2. I have sores on my toes that are not healing not even with antibiotics second round. today, I feel pretty good not much muscle strength though, because I took ozempic shot last night. I think some of tihs could be from statin use for 2 years, which is reversible.