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Trying to connect with Lichen sclerous and vulvar cancer women.
Gynecologic Cancers | Last Active: Nov 4 3:56pm | Replies (34)Comment receiving replies
I live in fear too. On breast cancer the fear goes from scan to scan. I often feel lumps in arm pit, then get additional scans.
I just kinda got use to beast cancer treatment and prevention for 10 years, and lichen sclerous (LS) showed up. I can actually see these pre-cancerous cells. This can turn to a variety of cancers which have no good treatment outcomes.
The anxiety fuels me into research and ideas for how to navigate my journey because the science is limited in LS.
It is exhausting mentally, emotionally, and physically. I don’t know anyone with both LS and breast cancer ER+ which calls into question how to treat both because of the connection to estrogen.
I appreciate the authentic conversations here. And people’s willingness to divulge fear. It helps.
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@kellytzoumis I so very much agree with you. Cancer and the resultant fear is exhausting at every level. I really am glad that you found us here on Mayo Clinic Connect. No one expects us to exude courage at every step. In fact, I would say that there are few expectations here other than sharing your own story and supporting one another. I have been on a few other sites such as the the Cancer Survivors site on cancer.org. Maybe it's because I started my cancer journey here but I prefer Mayo Clinic Connect.
It does help.