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Newly diagnosed: being brave and fearful at the same time
Gynecologic Cancers | Last Active: Oct 25, 2024 | Replies (21)Comment receiving replies
This level of women supporting each other is amazing. Empathy. I often feel isolated because no one talks about Lichen Sclerous or vulva cancer. It is rare but also has limited to no research and as a result limited options for effective treatment.
Replies to "This level of women supporting each other is amazing. Empathy. I often feel isolated because no..."
Hi: Is Lichen Sclerous same as Paget Disease of the Vulva? Pardon my ignorance.
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Understand, I wasn't aware of it until I saw it mentioned in the group.
So I've decided to do everything the doctor recommends plus I sought a second opinion because it's what they have. I asked to be in a maintenance trial. The Dr will select it for me but the most important the think I'm doing is living a different lifestyle. I doing all the activities I use to do, but the research on exercise to prevent recurrence in beast and colorectal cancers can reduce the probability of recurrence by as much as 58%.
I also changed what I eat. I'm following a metabolic syndrome diet. I am working with a holistic Dr who is also an MD. With his guidance in correcting issues with my gut, I also have Crohn's. Now we're working on metabolic health. After I complete treatment we will deal with hormones (thyroid) and allergies and sensitivities.
I'm early in this journey. I'm doing all things that have evidence to show some positive impact.
This things people with all cancer can talk about