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Adhesive Arachnoiditis & the Effects on Walking
Chronic Pain | Last Active: 10 minutes ago | Replies (39)Comment receiving replies
I have Adhesive Arachnoiditis. I crushed L1 in a horse riding accident in 1986. Since then I have had three back surgeries and have four rods and screws in my back. My AA was caused during my third surgery when my dura was cut and I had a spinal fluid leak. I could walk very well, but for the last three years my walking has diminished and I can now walk the length of my home.
Replies to "I have Adhesive Arachnoiditis. I crushed L1 in a horse riding accident in 1986. Since then..."
Mine began in 1972 with possibly an X-ray test with dissipating dye injected directly into suspect disc and/or subsequent laminectomy (L2). Surgeon left a small metal “clip” marking the place arachnoiditis starts. Recent MRI shows clip moved to sacral area…likely from a fairly recent MRI for a different issue. My walking is getting worse rapidly…I used to walk 6 miles a day!
What therapies have you found that help!
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Hi @sophie46, my mom is very similar to you with tarlov cysts, CSF leaks and now AA. Her original issue was just the CSF leak and we discovered the tarlov cysts while trying to find her leak. She has had a lumbar puncture, blood patch and now four fibrin glue injections into 4 cysts which she believes has now caused her to develop AA. She isn't doing well at all and is now scared to do anything further to try and find and fix her leak for fear of worsening the AA. Can I ask, are you still suffering from the spinal fluid leak? Did you have any procedures to try and fix your leak and if so, did they make the AA worse? Any advice? Thanks so much!