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Chemo-induced Peripheral Neuropathy and Breast Cancer

Posted by karendb @karendb, Feb 10, 2019

Hi. Karen here again. Since my last chemo treatment on dec 19th I've had terrible neuropathy in both hands and feet. Has anyone else had this and do you know how long it lasts?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 2 9:59am
In reply to @seindroit "Hello everyone, Breast cancer 17mm discovered in November 2023, Her2+++, operation in December 2023, 3 chemo..." + (show)
@seindroit

Hello everyone,
Breast cancer 17mm discovered in November 2023, Her2+++, operation in December 2023, 3 chemo ec then 12 taxols (until June 2024), 18 radiotherapy sessions and on Tamoxifene since August.

I still have neuropathy in my 2 feet and 2 fingers on each hand. It gets worse with the cold.
What bothers me are the strange sensations in my face, in both temples, both eyes and my forehead. It comes and goes, amplified by stress. It's like my muscles are being pulled, sometimes it feels like numbness. No facial paralysis. Just a sensation that drives me crazy.
I'm thinking it could be the taxol, because I've read about similar experiences... But I'm afraid... So here I am to exchange ideas...

Thanks in advance

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Hi @seindroit, I moved your question about neuropathy to this related discussion. Click the link to see helpful tips from members.
- Chemo-induced Peripheral Neuropathy and Breast Cancer: https://connect.mayoclinic.org/discussion/neuropathy-11/

@seindroit, did you talk to your cancer team about the sensations in your face to rule out something else?

REPLY
cancerstage1 | @cancerstage1 | Oct 6 8:37am
In reply to @mistymar "Mine wasn’t as bad, just legs and feet but it wouldn’t go away after chemo (Taxotere)...." + (show)
@mistymar

Mine wasn’t as bad, just legs and feet but it wouldn’t go away after chemo (Taxotere). After 7 months, when I finally asked if it was permanent, he recommended trying alpha lipoid acid, 600mg twice daily. Can get at most “health food” places or vitamin shoppes but I got last bottle on Amazon for that strength. Noticed a difference within a couple weeks and continued for 6 months and only have a little residual in left foot.

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I had the same thing happen to me. both my feet felt like I had permanent pads on my soles.
I had tingling in my neck that lasted for what seemed like minutes but probably was less than one minute. I stopped taking Letrozole and within six days it was a lot better. I think in time both symptoms will go away the longer I am off Letrozole . My oncologist said it was not the Letrozole, but my neurologist said, it had to be. Nothing else was wrong with my nerve endings.

REPLY
djewison | @djewison | Oct 7 8:24am

Hi Karen
I did wear cold mitts and booties during my chemo that helped with getting neuropathy.

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