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Trying to connect with Lichen sclerous and vulvar cancer women.

Gynecologic Cancers | Last Active: Nov 4 3:56pm | Replies (34)
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@colleenyoung

Hi @kellytzoumis, I hope you saw the helpful posts from @joyceinil and @andwho. Having a gynecologic cancer can be very isolating. I'm glad you found Mayo Clinic Connect. How are you doing?

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Replies to "Hi @kellytzoumis, I hope you saw the helpful posts from @joyceinil and @andwho. Having a gynecologic..."
andwho | @andwho | Oct 7 8:59am

Does anyone feel the same..,
My life has changed & will never be the same.
Any advise on how to deal with this would help!

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Retired desert dweller | @kellytzoumis | Oct 7 10:22am

Thanks for the posts and connections. I am seeing my gynecologist at home today because I found a white mass and collection of discolored dark cells over the weekend. I respond well to clobetasol twice a week and use moisturizing vulva creams in between. Sometimes I use baby desitin based on recommendations from my Mayo gyn.

I don’t know anyone who has LS other than these digital
Boards. I meet with an endocrinologist this month who is measuring saliva and blood to check for adrenal glad precursors to estrogen because when I end exemestane this month I want to make sure they are not overproducing androgens that lead to estrogen. I am a PCO so this is another factor.

My situation is complicated with recurring breast cancer over 10 years while taking tamoxifen. I end AI this month. Scared out of my mind. Had max radiation already for second recurrence.

I would love to read more and stay in contact with folks jere#

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