← Return to Rare Cancer: Gynecologic Extramammary Paget's Disease

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@joyceinil

I would very much like to talk to you about minimizing the side effects. However, my treatment for EMPD has been put on hold for probably five weeks. On Aug 23 I suddenly lost the sight in my right eye. It was feared I had Giant Cell Arteritis in the back of my eye which could wipe out the other eye as well. To prevent this I was put in a very large wonderful hospital in St Louis, Mo and given massive doses of steroids. In 3 days they decided it was PROBABLY not that but they continued the treatment. Luckily, I still have the sight in my left eye. After I returned home, it seems like I brought covid home with me and just got out of the hospital after another 10 day stay. I can't seem to get a break. Now I have to get weaned off the steroids before I can start the imiquimod. I am 84 and this has taken a toll on my old body. I will contact you when I am finally ready for that treatment, Thank you so much

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Replies to "I would very much like to talk to you about minimizing the side effects. However, my..."

@joyceinil Oh, dear, you have certainly been through it in hte last few months. How frightening to suddenly lose vision in one eye. It's good to know that your doctor was right there and you went to the wonderful hospital in St. Louis. While no one wants to be in the hospital it sounds like you had good care there although you were exposed to COVID? I do hope you are feeling better today, can wean off the steroids and start the treatment again for EMPD.