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One year past prostatectomy, in waiting mode.

Prostate Cancer | Last Active: Oct 14 9:29am | Replies (38)

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@robertmizek

Jeff, I respectfully disagree. Outside of this forum, I am active in the prostate cancer support community in the Chicago metropolitan area. I personally know at least a half dozen men whose PSA has been less than 0.01 for years after receiving primary therapy, primarily RALP. One friend of mine was getting his PSA checked every six months and now has a PSA of 0.025 with a prior reading of 0.01. His medical oncologist is now decreasing the interval of his PSA test to monthly so they can monitor what the doubling time is. I’m sure you know that a doubling time of less than six months indicates aggressive disease.

I interviewed one of the top oncologists in Chicago and he explained that while the NCCN standard is 0.1 ng/mL, he and other leading doctors use ultra sensitive PSA like a barometer that indicates a forthcoming change well before a storm shows up on radar or in the case of PCa, an MRI or pet scan. Makes sense to me.

Good luck on your journey.

Bob

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Replies to "Jeff, I respectfully disagree. Outside of this forum, I am active in the prostate cancer support..."

I participate in the advanced prostate cancer groups, everyone has metastasis or reoccurrence. I guess that makes a difference. If I was participating in the low/intermediate group I would probably see what you’re saying.