Connect
← Return to One year past prostatectomy, in waiting mode.
Discussion
One year past prostatectomy, in waiting mode.
Prostate Cancer | Last Active: Oct 14 9:29am | Replies (38)Comment receiving replies
I have a real problem with their .01. For years, I have been hearing people come into the Ancan.org weekly meetings and asking if they should do something about their PSA. I don’t think I’ve heard of one person that had .01. They complain about their .02 going up to .03 or their .03 going up .05. Dozens of people who have less than .1 worrying about it going up and down a little bit over many months.
It seems like .01 is an unrealistic target, but I guess they can use it as their standard, but I bet almost no one meets it.
Replies to "I have a real problem with their .01. For years, I have been hearing people come..."
Connect
Jeff, I respectfully disagree. Outside of this forum, I am active in the prostate cancer support community in the Chicago metropolitan area. I personally know at least a half dozen men whose PSA has been less than 0.01 for years after receiving primary therapy, primarily RALP. One friend of mine was getting his PSA checked every six months and now has a PSA of 0.025 with a prior reading of 0.01. His medical oncologist is now decreasing the interval of his PSA test to monthly so they can monitor what the doubling time is. I’m sure you know that a doubling time of less than six months indicates aggressive disease.
I interviewed one of the top oncologists in Chicago and he explained that while the NCCN standard is 0.1 ng/mL, he and other leading doctors use ultra sensitive PSA like a barometer that indicates a forthcoming change well before a storm shows up on radar or in the case of PCa, an MRI or pet scan. Makes sense to me.
Good luck on your journey.
Bob