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Lumbar puncture - my next step in my journey

Neuropathy | Last Active: Oct 11 6:59pm | Replies (23)
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@slkanowitz

You can have CIDP with a normal lumbar puncture result! I have it and mine was normal. They check for elevated protein levels in the spinal fluid but it isn’t always high. It’s unreasonable, IMO, to wait 4 months for a discussion when your neuropathy is rapidly progressing. I urge you to get into a neuromuscular specialist, different than a neurologist. That is the dr to see to evaluate you for CIDP. If that’s what you have, it can become very debilitating and early diagnosis and treatment is essential! Good luck and please don’t delay.

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Replies to "You can have CIDP with a normal lumbar puncture result! I have it and mine was..."
mayoscout | @mayoscout | Oct 6 6:13am

Thanks for the reply.

Well he doesn't really know if it's CIDP. All of his previous guesses were wrong so he is probably wrong with this too.

I agree I shouldn't be waiting so long since this is progressing so quickly. I may give them a call tomorrow to see if I can come in sooner. I don't know why he wants to wait so long. Maybe he has a reason and it would be nice to know that if he does.

I'll have to see if the VA will approve a neuromuscular doc. They have a process so in order to approve I need to see what requirements they have to approve the referral.

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