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Just started a week ago the big three and feel so very sick
MAC & Bronchiectasis | Last Active: Oct 19 2:38pm | Replies (47)Comment receiving replies
Well I took meds for two years no issues drug resistant to azithromycin. I went off them in May because we thought azithromycin was causing me headaches. I had 3 negative tests in the beginning. Now they are all positive. I did a sputum test September 23 for national Jewish health. My contact there said it grew fast. I go there in November. She said they can help me. I am praying they can help. But i don’t think it ever goes away. I cough 24/7. Doing compression vest and nebulizer. I also have bronchectisis
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I see, so you were clear from May to September, and now positive again. Frustrating. Again, I am new to all of this but National Jewish Health Center seems to be an excellent facility and I trust they will be able to give you the best advice on next steps. I have been reading about protocols for recurrence/reinfection and there are definitely tools to help you fight this. Sorry to hear about the 24/7 cough, that must be equally frustrating. Do you find the compression vest productive? My pulmonologist mentioned it last appointment but I am just starting to nebulize and it all seemed a little much to take on all at once, so I told her I would get back to her on the vest. I also am starting a pulmonary physio program soon and wanted to ask them what they thought about the different airway clearance options for me. My issue is I have little to no cough - just an occasional dry cough - with no sputum production. Even nebulizing I am dry, dry, dry. And yet my CT shows mucus impaction. Grrrrr. How do I get that dang mucus out!!! Anyway, best of luck to you at National Jewish Health Center. I have faith they will get you on a successful path forward.