I’m 10 months post surgery. Gleason 4+3. Questionable margins. PSA was in the mid 30s going into surgery. Have been undetectable on my three PSA tests since surgery. The first test I had was a Quest labs test that was < 0.02. I didn’t like the threshold being that high, so I switched to the LabCorp test, which has a threshold of less than 0.006. I’ve been undetectable on the two LabCorp test that I’ve had so far. I know that some big cancer centers, including the mayo clinic, don’t like testing anything with thresholds below 0.1. I don’t believe in this philosophy at all. I want to know if somethings growing in me so I can make plans and get appointments ahead of time. I understand that they can’t detect anything well on the PSMA PET Scan until the PSA is above a certain threshold. But, with possible positive margins, I have a pretty good ideas as to where the cancer might be if it grows back. And with all the delays of getting appointments, want to have my ducks in a row if it does come back. Having said that, I also know that having a very low threshold test and being below that threshold puts me in a good place for now.
The waiting is awful between the tests. However, I also know that I’m in a better place than I could be. I’ve done all the recurrence nomograms and know what my odds are of recurrence. They are definitely higher than 50% in the next ten years.
To answer your real question, have people been in this DMZ and then never had an occurrence? The answer is absolutely. I would also say that the guys that do not have a recurrence are very much under-sampled on these forums. You might see somebody post something like “it’s my three-year anniversary of being undetectable“ or something like that, but that’s about it if they’re in a good place. However, if you go detectable, of course you’re going to go to these boards and report it. I know I will.
So, consider yourself lucky so far. It may stay that way. It may not. But, such as the world we live in now for the rest of our lives. I hope I’m sitting here worrying about my test and 10 years and still seeing it undetectable.
Good luck to you.
One can’t control if it goes into remission or comes back. It’s in Gods hands I believe. My agent Orange prostate cancer was in remission 52 years after exposure.