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What do I do now?

Neuropathy | Last Active: Oct 10 9:11am | Replies (40)

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@johnbishop

I had not been diagnosed with neuropathy or nerve damage prior to my appointment. I had a referral from my local Mayo Family Health Clinic to see a neurologist. They confirmed I had neuropathy and sadly got the same answers that my primary care had told me over the years - no medications available that are for treating numbness symptoms which is what I have. I'm one of the 20% or so of folks with neuropathy that do not have the pain or burning symptoms just numbness and some tingling. Which is why I came to Connect looking for answers myself. There really is no magic bullet cure for neuropathy and there are many different people out there selling dubious treatments which is why we have to do our own research.

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Replies to "I had not been diagnosed with neuropathy or nerve damage prior to my appointment. I had..."

Hi to fellow 20%er! My neuropathy goes from feet to hips. Occasional brief electrical snap but no pain. Just total numbness and tingling and feel like I have super tight bands squeezing all day! Like really heavy tight socks and pants. Makes for uncomfortable sleeping at night! It’s so frustrating to know there’s nothing to reverse it but so grateful to not have the pain that so many experience. ❤️

It is never good to receive such news. However, I can tell you that you are indeed fortunate not to have that severe pain. I am in severe pain every day, usually anywhere from a seven to nine. It robs me of a lot of joy, But, we have to face the music. Have to find alternate ways to live. Spend more time in the most comfortable position you can find. Then read, pray, watch tv, or whatever makes you happy. Don't give up. Keep searching. There are always new treatments coming out.