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What do I do now?

Neuropathy | Last Active: Oct 10 9:11am | Replies (40)

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@cecelia19

Can you tell me how you went about getting seen at Mayo? I’ve been there almost a dozen other times for family members needing cancer treatment and we get in right away. Five years ago when my neuropathy started and was very localized I tried to get in and they rejected me saying they didn’t do anything differently to treat PN, meaning the anti-epileptics.

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Replies to "Can you tell me how you went about getting seen at Mayo? I’ve been there almost..."

I had not been diagnosed with neuropathy or nerve damage prior to my appointment. I had a referral from my local Mayo Family Health Clinic to see a neurologist. They confirmed I had neuropathy and sadly got the same answers that my primary care had told me over the years - no medications available that are for treating numbness symptoms which is what I have. I'm one of the 20% or so of folks with neuropathy that do not have the pain or burning symptoms just numbness and some tingling. Which is why I came to Connect looking for answers myself. There really is no magic bullet cure for neuropathy and there are many different people out there selling dubious treatments which is why we have to do our own research.