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One year past prostatectomy, in waiting mode.
Prostate Cancer | Last Active: Oct 14 9:29am | Replies (38)Comment receiving replies
At UCLA I had 6 months of ADT and Erleada then surgery then 6 more months of these meds for my gleason 9 locally advanced. That was 3 years ago. Studies have indicated that I may be event free for 41 months from the beginning of treatment. I think that this aggressive treatment was good for me. I had side effects from the meds but they were tolerable. My doctor has advised me that the cancer will not kill me and I think that he was thinking of me driving the freeways in LA. It was part of his bedside manner
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I know exactly what you are saying and I too have anxiety, bordering on depression! I had my non-nerver sparing RARP on June 24th at Mayo in Phoenix. I was a Gleason 9 with 60% Intraductal Carcinoma, stage pT3a (EPE), with cribriform pattern 4 present. I had clear margins and no lymph node involvement (21 removed). During my follow-up with the surgeon, I ask about reoccurance and he said it would absolutely happen! I have my first PSA next Monday, so I just wait to see what's next, and I suppose that will be the plan every 3 months? I try hard to put it all on ignore, but it is difficult, so I spend my time searching for the best undergarment for my incontinence, doing kegals (I even dream about them), and daydreaming about the sex that I used to enjoy. Thankfully, I have a very understanding and patient wife! I think one of the worst things is the constant barrage of feedback from friends & websites preaching that Prostate Cancer is no big deal - you don't die from it, rather you die with it. Well, I suppose if those folks had to deal with high risk, highly agressive PCa , they might not feel that way!