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I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?
Polymyalgia Rheumatica (PMR) | Last Active: Nov 20 12:45pm | Replies (38)Comment receiving replies
The itching started exactly one day after I stopped the prednisone. I decided (my Doctor is on vacation!!) on my own to restart 5mg of Prednisone and both the itching and bone aching have improved. There is something about not producing enough CORTISOL? That might have caused that? Just don’t know.
Replies to "The itching started exactly one day after I stopped the prednisone. I decided (my Doctor is..."
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"There is something about not producing enough CORTISOL? That might have caused that? Just don’t know."
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I think that prednisone masks so many things it is hard to know. It could be a low cortisol level or arthritis or flare of PMR or maybe flare of something else entirely ... nobody seems to know. I have never considered an allergic reaction to something before this but that's a possibility too.
"PREDNISONE (PRED ni sone) treats many conditions such as asthma, allergic reactions, arthritis, inflammatory bowel diseases, adrenal, and blood or bone marrow disorders. It works by decreasing inflammation, slowing down an overactive immune system, or replacing cortisol normally made in the body."
https://my.clevelandclinic.org/health/drugs/20469-prednisone-tablets
I just have my doubts that people increase their Prednisone dose all the time for a PMR flare only. I know that I increased my Prednisone dose often enough for things that surely weren't just PMR.
Things just got so complicated. The only thing I know was that I could never get off prednisone until Actemra was tried. Even after Actemra was tried, I had know idea what I was doing.
Doctors can't even diagnose PMR with a high degree of certainty.