Thank you Colleen. Yes I’m having surgery at University of Penn in Phila, PA. My cousin is a radiation oncologist there and has helped in navigating doctors for my care. I did view the Mayo Clinic video you provided.. Mobilizing from lying to standing will be done rather quickly. While the surgery is rather extensive my cancer is also effecting my urethra so surgery as such is necessary.
Will stay hopeful to make a connection.
I was recently informed that I would need pelvic exenteration surgery by my oncologist at the University of Penn in Philadelphia, PA. I am looking to hear from women who have been through this procedure.
I’m scheduled to have pelvic exenteration and wondering about recovery from surgery. I will not be able to sit for 6-8 weeks and wondering how to manage such especially for car travel to doctor apts.
You may possibly be able to get your insurance to cover for a medi-car/low key ambulance type service that could drive you back home in a lying position (i.e. like a gurney) if your physician writes the orders its needed because you can't sit. I've had to help out others who could not mobilize themselves to get to necessary doctors appts and that was how we ended up doing it. Likewise they may even cover it for the followup appts if its only a few. Not sure where you're located but Elite ambulance service is one that I've seen a few states that offers this. Some ambulance / Medicar companies only contract directly with the hospitals and wont do residential pickups/dropoffs. Good luck to you, sending positive thoughts for fast healing.
You may possibly be able to get your insurance to cover for a medi-car/low key ambulance type service that could drive you back home in a lying position (i.e. like a gurney) if your physician writes the orders its needed because you can't sit. I've had to help out others who could not mobilize themselves to get to necessary doctors appts and that was how we ended up doing it. Likewise they may even cover it for the followup appts if its only a few. Not sure where you're located but Elite ambulance service is one that I've seen a few states that offers this. Some ambulance / Medicar companies only contract directly with the hospitals and wont do residential pickups/dropoffs. Good luck to you, sending positive thoughts for fast healing.
Thank you. Will look into that as an option. It would make things much easier. The tissue grafting is why I won’t be able to sit and want to protect such.
I was recently informed that I would need pelvic exenteration surgery by my oncologist at the University of Penn in Philadelphia, PA. I am looking to hear from women who have been through this procedure.
It hasn't been scheduled yet. I am doing a lot of research on alternatives to this surgery as I am afraid of my quality of life afterward. I hope that your surgery goes well, and I would love to stay in touch.
I’m scheduled to have pelvic exenteration and wondering about recovery from surgery. I will not be able to sit for 6-8 weeks and wondering how to manage such especially for car travel to doctor apts.
I would love to stay in touch with you as well. I too am concerned about the quality of my life afterwards. I did speak to one woman who had surgery 5 years ago and is doing well. I am unable to have anymore radiation treatment. I had radiation and chemotherapy a year ago with good results for 1 year. With reoccurring cancer this is the best choice, surgery to get clear margins and then chemotherapy. I would like to get back into remission. I recognize recovery will be difficult. Having been a nurse some of the healthcare I will experience is not unfamiliar and feel like it has helped me to make the decision for surgery. I’m grateful I have some options to keep fight my cancer.
I’m scheduled to have pelvic exenteration and wondering about recovery from surgery. I will not be able to sit for 6-8 weeks and wondering how to manage such especially for car travel to doctor apts.
Hello,
I am a 37yo female who was diagnosed with Cervical Cancer(3b) a year ago. I have been through all the radiation I can possibly have, I went through 2 treatments of brachytherapy earlier this year and I am now on my last treatment of chemotherapy. My next step to consider is a total pelvic exenteration operation. It is a major surgery so I wanted to hear all the pros and cons from everyone who has experienced this surgery. My biggest question for anyone who has gone through this surgery is, Would you do it again?
Thank You for taking the time to read part of my story. I would love to hear all the feedback possible and I will also answer questions of myself if you have any.
Hello,
I am a 37yo female who was diagnosed with Cervical Cancer(3b) a year ago. I have been through all the radiation I can possibly have, I went through 2 treatments of brachytherapy earlier this year and I am now on my last treatment of chemotherapy. My next step to consider is a total pelvic exenteration operation. It is a major surgery so I wanted to hear all the pros and cons from everyone who has experienced this surgery. My biggest question for anyone who has gone through this surgery is, Would you do it again?
Thank You for taking the time to read part of my story. I would love to hear all the feedback possible and I will also answer questions of myself if you have any.
I have no personal experience with this procedure. I hope you can find out what you need.
I did recently watch a documentary type show where they performed this procedure on a man. There were two surgeons and it was a two day surgery due to the complexity. It’s airing on Prime. The series is Surgeons: At The Edge Of Life. Apparently, it was originally on the BBC. Filmed in the UK. Season 4, Episode 4. It’s very graphic. I found it fascinating. They show the personal side of the situation too. https://www.bbc.co.uk/programmes/m00123yx
Hello,
I am a 37yo female who was diagnosed with Cervical Cancer(3b) a year ago. I have been through all the radiation I can possibly have, I went through 2 treatments of brachytherapy earlier this year and I am now on my last treatment of chemotherapy. My next step to consider is a total pelvic exenteration operation. It is a major surgery so I wanted to hear all the pros and cons from everyone who has experienced this surgery. My biggest question for anyone who has gone through this surgery is, Would you do it again?
Thank You for taking the time to read part of my story. I would love to hear all the feedback possible and I will also answer questions of myself if you have any.
This is a major surgery.If you haven't already, read this article that explains it thoroughy.https://my.clevelandclinic.org/health/treatments/22455-pelvic-exenteration.
I suggest you get a second or even a third opinion, because your quality of life would be pretty bleak.
I have stage 3C1 endometrial cancer, and had a total hysterectomy. After a round of chemo (no radiation because I couldn't have it), cancer still spread to my lymph nodes, likely because the surgeon didn't get it all out. But pelvic-exenteration was never mentioned as a treatment. Currently on Letrozole to see how that works, and if not, will consider immuno and or/targeted therapy.
Hope this helps somewhat.
Hello,
I am a 37yo female who was diagnosed with Cervical Cancer(3b) a year ago. I have been through all the radiation I can possibly have, I went through 2 treatments of brachytherapy earlier this year and I am now on my last treatment of chemotherapy. My next step to consider is a total pelvic exenteration operation. It is a major surgery so I wanted to hear all the pros and cons from everyone who has experienced this surgery. My biggest question for anyone who has gone through this surgery is, Would you do it again?
Thank You for taking the time to read part of my story. I would love to hear all the feedback possible and I will also answer questions of myself if you have any.
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Hi,
I was recently informed that I would need pelvic exenteration surgery by my oncologist at the University of Penn in Philadelphia, PA. I am looking to hear from women who have been through this procedure.
You may possibly be able to get your insurance to cover for a medi-car/low key ambulance type service that could drive you back home in a lying position (i.e. like a gurney) if your physician writes the orders its needed because you can't sit. I've had to help out others who could not mobilize themselves to get to necessary doctors appts and that was how we ended up doing it. Likewise they may even cover it for the followup appts if its only a few. Not sure where you're located but Elite ambulance service is one that I've seen a few states that offers this. Some ambulance / Medicar companies only contract directly with the hospitals and wont do residential pickups/dropoffs. Good luck to you, sending positive thoughts for fast healing.
Thank you. Will look into that as an option. It would make things much easier. The tissue grafting is why I won’t be able to sit and want to protect such.
Hi,
Are you having pelvic exenteration surgery soon or have you had the surgery already. Mine is scheduled for 10/14/24.
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2 ReactionsHi,
It hasn't been scheduled yet. I am doing a lot of research on alternatives to this surgery as I am afraid of my quality of life afterward. I hope that your surgery goes well, and I would love to stay in touch.
I would love to stay in touch with you as well. I too am concerned about the quality of my life afterwards. I did speak to one woman who had surgery 5 years ago and is doing well. I am unable to have anymore radiation treatment. I had radiation and chemotherapy a year ago with good results for 1 year. With reoccurring cancer this is the best choice, surgery to get clear margins and then chemotherapy. I would like to get back into remission. I recognize recovery will be difficult. Having been a nurse some of the healthcare I will experience is not unfamiliar and feel like it has helped me to make the decision for surgery. I’m grateful I have some options to keep fight my cancer.
-
Like -
Helpful -
Hug
4 ReactionsHello,
I am a 37yo female who was diagnosed with Cervical Cancer(3b) a year ago. I have been through all the radiation I can possibly have, I went through 2 treatments of brachytherapy earlier this year and I am now on my last treatment of chemotherapy. My next step to consider is a total pelvic exenteration operation. It is a major surgery so I wanted to hear all the pros and cons from everyone who has experienced this surgery. My biggest question for anyone who has gone through this surgery is, Would you do it again?
Thank You for taking the time to read part of my story. I would love to hear all the feedback possible and I will also answer questions of myself if you have any.
-
Like -
Helpful -
Hug
2 ReactionsI have no personal experience with this procedure. I hope you can find out what you need.
I did recently watch a documentary type show where they performed this procedure on a man. There were two surgeons and it was a two day surgery due to the complexity. It’s airing on Prime. The series is Surgeons: At The Edge Of Life. Apparently, it was originally on the BBC. Filmed in the UK. Season 4, Episode 4. It’s very graphic. I found it fascinating. They show the personal side of the situation too.
https://www.bbc.co.uk/programmes/m00123yx
-
Like -
Helpful -
Hug
3 ReactionsThis is a major surgery.If you haven't already, read this article that explains it thoroughy.https://my.clevelandclinic.org/health/treatments/22455-pelvic-exenteration.
I suggest you get a second or even a third opinion, because your quality of life would be pretty bleak.
I have stage 3C1 endometrial cancer, and had a total hysterectomy. After a round of chemo (no radiation because I couldn't have it), cancer still spread to my lymph nodes, likely because the surgeon didn't get it all out. But pelvic-exenteration was never mentioned as a treatment. Currently on Letrozole to see how that works, and if not, will consider immuno and or/targeted therapy.
Hope this helps somewhat.
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Helpful -
Hug
4 ReactionsThank you so much for your response and information 😊
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2 Reactions