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Lumbar puncture - my next step in my journey

Neuropathy | Last Active: Oct 11 6:59pm | Replies (23)

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@mayoscout

Hi @greg1956

I'm glad to hear you're doing well despite the challenges you've faced.

I understand your confusion about "lumbar puncture." It's a medical procedure used to collect cerebrospinal fluid (CSF) for testing. This is done to diagnose conditions affecting the brain, spinal cord, and nerves.

Your experience with the spinal cord injury is inspiring. It's wonderful that surgery has helped alleviate much of your pain and restore some of your mobility.

I'm also impressed by your positive attitude toward your TBI. It's clear that you've found ways to adapt and thrive despite the limitations. Your connection with your church community and online friends is a testament to your resilience and ability to find support.

I hope you continue to find joy and fulfillment in your life and stay positive.

********************

I too suffer from TBI and many other issues. Most of my injuries are related to my military service back in the early 2000s. I'm in my 30s now and some of these problems have started to really take a toll on my life.

I haven't been able to work in multiple years and I'm struggling to find meaning in life again.

I'll get there eventually, I hope. My wife works hard to keep me positive but being that I'm stuck in bed most of the time when I was once active, and loved to travel, it is hard to be positive for me.

I'm not good with people so I do not have friends. I used to have a lot but I suppose due to my TBI, severe PTSD and such I'm not great at talking and connecting. Guys here in my age group get scared of me and stop talking after a few interactions. My wife has tried to help with that but I continue to struggle.

Hopefully soon we'll have some medical answers and one day maybe I'll figure out how to be good with people again. I want to feel better and I work really hard at it but things just continue to get harder no matter what I do.

Oh, I got the lumbar puncture results back yesterday and they didn't find anything. So I guess good news for that but also bad news because I continue to have no answers and my neurologist keeps getting it wrong.

Take care and thanks for your reply and your story.

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Replies to "Hi @greg1956 I'm glad to hear you're doing well despite the challenges you've faced. I understand..."

xxx BLESS YOU… xxx
Bless you, man. Your memory and writing is fantastic! You are young; really young with a great future of you, your wife, and your family!

THANKS OF WHAT YOU WROTE…
Your writing, thanking, understand it… you knowledge is way more better than my little k owlege 🙂 I’m so glad of what you have of what happened. You are ALIVE!

Thanks,
Greg D. @greg1956

@mayoscout Thank you for your military service. I'm sorry you are suffering now, and I wanted to share a link to a music therapy retreat. This was started by a friend of mine, and they have helped many veterans deal with PTSD. Music heals, and this works because a person is paired with a professional song writer and together, you tell your story through a song that you create together and perform. Check it out. If this is something you could do, I would highly recommend it. I've known Mack a lot of years and doing this is very important to him in helping others to heal.

"Saving Lives with Songs"
https://musictherapyretreats.org/