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What do I do now?

Neuropathy | Last Active: Oct 10 9:11am | Replies (40)

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@johnbishop

Welcome Judy @judephi, I was diagnosed at Rochester Mayo but I don't have any pain with my neuropathy, only the numbness and some tingling. I also stopped drinking alcohol after doing a little research on neuropathy. I don't think small amounts make a difference but for me I was more worried about further progression and wanted to avoid anything that has a possibility of making the neuropathy worse.

The only suggestion I have is to learn as much as you can about neuropathy while you wait for the appointment and also write down any questions you have so that you can discuss them at your upcoming appointment. Here are 2 of the sites I've found helpful for learning more about neuropathy:
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neurpathy: https://www.foundationforpn.org/

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Replies to "Welcome Judy @judephi, I was diagnosed at Rochester Mayo but I don't have any pain with..."

Can you tell me how you went about getting seen at Mayo? I’ve been there almost a dozen other times for family members needing cancer treatment and we get in right away. Five years ago when my neuropathy started and was very localized I tried to get in and they rejected me saying they didn’t do anything differently to treat PN, meaning the anti-epileptics.