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Repatha

Heart & Blood Health | Last Active: Nov 19, 2024 | Replies (19)

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@vaniag

I have been on Repatha for 4 years. It helps. I am not seeing the tremendous drops in LDL like everyone else. My LDL runs between 85 and 100, down from a high of 198. I am statin intolerant so on Nexletol as well (Insurance does not like this combination but have a great team getting it approved at Inova). My Mother’s LDL dropped to 34 on Repatha and low dose statin.

No one seems to know why I am not seeing the tremendous decreases in LDL. The cardiologists want it at 55, but even though I eat a modified Mediterranean diet, exercise, not overweight, take meds, and negative for FH - that is as low as it goes for this body. I have high Lp(a) as well and enrolled in the Horizon trial. Doing all I can…but no one has figured out why I am a zebra…

But Life is Good. I am happy they have so many alternatives for us zebras.

Have a wonder-filled day!

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Replies to "I have been on Repatha for 4 years. It helps. I am not seeing the tremendous..."

Curious, have they checked your parathyroids and thyroids?

What was your Lp(a)?
Did that come down too?