neuropathy related to cervical laminectomy and fusion

Hello @kevinversace55, Sorry to hear you haven't found much relief for the burning pain. You might want to scan through the following discussion to learn what others have shared.
-- Small Fiber Neuropathy burning?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-burning/

There is also a discussion on Myofascial Release Therapy that you may find helpful.
-- Myofascial Release Therapy (MFR) for treating compression and pain:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Please return to your orthopedic surgeon to be sure there is no scar tissue impinging on nerves or other problems. If not, then try some steroid injections IF your doctor supports that, acupuncture and of course Physical Therapy. I hope your doctor has checked you for diabetes and such. I highly recommend MFR! But I think you might want the surgeon to do some xray/mri to make sure the surgery is still properly intact, good luck!

Dear @kevinversace55

xxx @LORIESCO SAYS… xxx
I was reading @loriesco question “be sure there is no SCAR TISSUE.. on NERVES or other problems”.

xxx PAIN,, OH, PAIN? xxx
Here’s what I did… 2 years ago, I feel down inside my garage thru my wooden steps. I hit me both rear-ends that started of deep pain from my rear-ends to the bottom of my feet. No more walking, but falling down many times a day. Thankfully, my brain-injury didn’t happen, but killed my lower body - for the last 2 years ago. I took pain meds but a few mths ago, the meds are gone, but still have the deep pain.

xxx SURGERY xxx
I had doctors-over- doctors that started my family doctor. That’s gone, BUT - thankfully - my family doctor moved to a better way; he sent me Dr. A. Checked my lower back and I used this 22 years ago, the other doctor who’s gone, fixed in my lower back. But there was a nerve that stuck to my part back.

During this - 4 mths ago - Dr. A. fixed my small lower back and moved that nerve was back too where it needed. Well during my surgery (according to my wife) took 6 hr surgery… there was “scar tissues” of more than one. It took him time fixing-over-fixing my lowest back - a small one.

xxx AT THE END… xxx
At this end, it took me 5-days at that hospital; making sure I can walk, eating, going to bathrooms. After that 5-day, I went home, and then my pain - every bit this - was GONE! He fixed the pain and the other 50% is left for me… exercising, stretching, walking, holding…

Thx,
Greg D. @greg1956

Its a struggle for sure! I'm glad you are making progress. I've spent 2 weeks at the hospital - two separate times for complications. It can take up to 10 years for nerves and such to "remodel." So I give myself more time than I think! No more one year to healing. Maybe 2 - 4 years now. In the meantime like you said - you just keep on. Some days great. Some days impossible. Best of luck Greg! hugs.

Oppps - sorry… 22 years was wrong; I had that was 2 years… I hit the wrong typing…

This might possibly help you with the burning feet.. It made a world of difference for me a few years ago, but I started with Erythromelalgia which changed my life in a bad way.. After several years I was diagnosed with Diabetes II and the burning feet continued for me. When I went to my first Diabetes information class the leader examined my feet and was shocked at the red burning condition.. She brought out a small bottle (using an eye dropper) and added a few drops to a small amount of hand lotion. The immediate result was the redness quickly faded away and the burning subsided. It was amazing. Now this doesn't work for many folks, but it worked for me and I still use it, years on.. NEUROPATHY F & M.... Available from Amazon and Walmart and other sources.. Cost is minimal, around $20 or so.. No prescription needed. It's worth a try for anyone with burning feet and legs..

I had leg radiculopathy last night. I used prescription topical lidocaine 5% and biofreeze. It took it away. But later it returned with a vengeance. Getting out and walking - it's all gone. For me, the area around the lumbar surgery is collapsing, so that might be causing nerves to impinge again OR nerves are regenerating from 2019 lumbar surgery. It can take 10 years for nerves to regrow.

My husband has had extremely painful Neuropathy for about 10 years. He has now lost all ability to stand and walk. He had intensive Physiotherapathy for 2 years and nothing changed except our fading bank balance. He is now in a wheelchair permanently and requires lifter to move into bed etc. Has anyone else lost the ability to stand and walk because of Neuropathy.

I had acdf c3-c6 neurosurgery almost two years ago due to severe spinal nerve compression which at the time affected my entire body neck downwards including bladder. Surgery was successful in almost all areas. My hands p & n had started the list of symptoms and remained after the surgery but was told it would take at least 4-6 months or more for the nerves to regenerate. Soon after surgery I started experiencing more pain and p & n in the fingers after touching my iPhone or iPad which progressed to all metals(Orthopedic Analysis and patch testing showed no allergic reaction). It progressed to allodynia(fabrics and leather) and hyperalgesia and affects all joints. My new neurologist has prescribed increasingly larger doses(now 30mg 3x/day)of baclofen for muscle tightness and spasms. All other pain management is handled by my PCP(who wishes the neurologist would prescribe it as he knows little about it). I’m now up to Gabapentin 600mg/3x/day and just added 30mg Cymbalta 2 weeks ago(I suggested it after reading scholarly testing results on reading about nerve hyperactivity. In the past I found that the increase in both the gabapentin and baclofen took about 2-3 weeks to adjust to the side effects. The baclofen and Cymbalta were added a week apart last month(neurologist and PCP prescribing) and having a harder time differentiating which side effects are from which rx. Having kind of hallucinations while sleeping,and nodding off during the day as the strongest new symptoms along with nausea when starting the Cymbalta. Waiting again for the new symptoms to decrease or stop. Unfortunately(or fortunately!) the addition of rx’s is helping me manage the pain of what seems to be a form of chronic central pain syndrome.

Hello @rhonnie24, Welcome to Connect. I can't even begin to imagine how difficult it has to be for you as a caregiver, as well as your husband to deal with his loss of the ability to stand and walk due to his painful neuropathy. I don't think you are alone and I'm hoping other members who may have some experience can respond. My only suggestion that has helped me in my neuropathy journey is to learn as much as you can about the condition and what is available that might help provide some relief. One of the better sites I've found to learn more is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/.

You mentioned he had intensive physiotherapy for 2 years and has had neuropathy for 10 years. Is your husband taking any medications to help with the pain?