Hi there. I initially thought I had an AN but it turned out to be a meningioma. The Acoustic Neuroma Association has an active forum on their website where you may find a bigger response. Really kind and informed people. Best of luck.
Thank you. I have a constant ringing/humming that became really noticeable this past February. I also have hearing loss on the left side. I did get new hearing aids which help with the loss, not the tinnitus (not yet). Recommended to wait and monitor at this point.
I was diagnosed with a 1.5 centimeter vestibular tumor and was wondering what is the best treatment. Radiation or surgery. Meet with oncologist March 3rd
I was diagnosed in May with AN. Repeat MRI oct and has grown but still small so on wait and watch. I been experiencing a lot more tinnitus and balance/dizziness in the last month. I feel like at times it is harder to walk. Like I am drunk or something! My hearing is still pretty good. My neurosurgeon said symptoms are totally unrelated to size of tumor you have. Could have a large AN with no symptoms or a small one with a lot of symptoms. When time comes, I will have surgery. I was informed that if you have radiation and surgery down the road is needed that it will be harder to do.
Good luck!
I was diagnosed in May with AN. Repeat MRI oct and has grown but still small so on wait and watch. I been experiencing a lot more tinnitus and balance/dizziness in the last month. I feel like at times it is harder to walk. Like I am drunk or something! My hearing is still pretty good. My neurosurgeon said symptoms are totally unrelated to size of tumor you have. Could have a large AN with no symptoms or a small one with a lot of symptoms. When time comes, I will have surgery. I was informed that if you have radiation and surgery down the road is needed that it will be harder to do.
Good luck!
Thanks. That all sounds pretty consistent with what we have heard. Just a little curious about the "wait and watch". I get that there is no great urgency for you to have the surgery. At the same time, "wait and watch" makes it sound like it might cease to be a problem for you. Is that what you have been told? We have heard that these ANs can stop growing but not that your current symptoms might go away.
On my 6 month MRI, mine did grow. I will have another MRI in July and see how much it has grown this time. Since I still have hearing in my left ear and it is fairly small, my neurosurgeon suggested I wait but was good with whatever option I decided. My AN is farther from brain (which I thought would be good but apparently not). I will lose hearing immediately after surgery. These are the reasons why I have decided to wait. They never mentioned it would stop growing. It’s just a matter of how big do I let it get before removal. Also, he did say that your brain can “adjust” slightly to your new normal. Last summer my symptoms did seem to get a little better for a few months. Symptoms started back again in oct and have gotten worse in the last month again.
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Hi there. I initially thought I had an AN but it turned out to be a meningioma. The Acoustic Neuroma Association has an active forum on their website where you may find a bigger response. Really kind and informed people. Best of luck.
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2 ReactionsThank you!
Hi @bobbimck, I'm bringing fellow members like @kimneiman @karenmet @mohanak @cynaburst @alexie1942 @saucy into this discussion as they have experience with auditory symptoms related to an acoustic neuroma.
Bobbi, what auditory symptoms are you experiencing? Hearing loss, tinnitus, fullness? Has treatment been recommended?
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1 ReactionThank you. I have a constant ringing/humming that became really noticeable this past February. I also have hearing loss on the left side. I did get new hearing aids which help with the loss, not the tinnitus (not yet). Recommended to wait and monitor at this point.
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1 ReactionI was diagnosed with a 1.5 centimeter vestibular tumor and was wondering what is the best treatment. Radiation or surgery. Meet with oncologist March 3rd
Just listened to a podcast about the options, etc. Very informative.
AcousticNeuroma Association through Mayo Clinic.
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1 Reaction1999 had a very large AN removed that was pressing on my brain stem.
I was diagnosed in May with AN. Repeat MRI oct and has grown but still small so on wait and watch. I been experiencing a lot more tinnitus and balance/dizziness in the last month. I feel like at times it is harder to walk. Like I am drunk or something! My hearing is still pretty good. My neurosurgeon said symptoms are totally unrelated to size of tumor you have. Could have a large AN with no symptoms or a small one with a lot of symptoms. When time comes, I will have surgery. I was informed that if you have radiation and surgery down the road is needed that it will be harder to do.
Good luck!
Thanks. That all sounds pretty consistent with what we have heard. Just a little curious about the "wait and watch". I get that there is no great urgency for you to have the surgery. At the same time, "wait and watch" makes it sound like it might cease to be a problem for you. Is that what you have been told? We have heard that these ANs can stop growing but not that your current symptoms might go away.
On my 6 month MRI, mine did grow. I will have another MRI in July and see how much it has grown this time. Since I still have hearing in my left ear and it is fairly small, my neurosurgeon suggested I wait but was good with whatever option I decided. My AN is farther from brain (which I thought would be good but apparently not). I will lose hearing immediately after surgery. These are the reasons why I have decided to wait. They never mentioned it would stop growing. It’s just a matter of how big do I let it get before removal. Also, he did say that your brain can “adjust” slightly to your new normal. Last summer my symptoms did seem to get a little better for a few months. Symptoms started back again in oct and have gotten worse in the last month again.