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ED after prostatectomy? Any first hand experiences overcoming it?

Prostate Cancer | Last Active: 5 days ago | Replies (29)
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@spino

@robertmizek When I replied earlier to @syoozi I hadn't read your original post. I guess I should be happy that's my biggest issue post-RALP. Pelvic floor pain that interfered with biking was my second biggest, but that seems resolved now, about 30 months out. ED, not so much, but I do have some hope. Trimix was my go to when I couldn't handle the PED5 inhibitors because of side effects. It worked for erections, but interfered with intimacy for both of us. I still have some in the refrigerator. I tried a RestoreX tensioning device when I heard about it a few months after surgery, but in hindsight I think a simple (and cheap!) VED from amzn would have been a better choice. I have used that over the last 6 months intermittently for therapy, but not for intimacy. The last few months I've retried sildenafil at my urologist's urging and been able to tolerate it, and that's been an improvement. Who knows where the journey will go from here.

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Replies to "@robertmizek When I replied earlier to @syoozi I hadn't read your original post. I guess I..."
robertmizek | @robertmizek | Oct 5 8:26am

Hey, thanks for your comment.

Like you, I love cycling. My perineum hurt for months after RALP and luckily I had a recumbent trike available that I bought after back fusion surgery in 2023. I’ve been riding that almost exclusively this year and have enjoyed it a lot.

I tried a VED about 6 weeks after surgery. I bought a battery powered unit. It hurt so bad that I discontinued it after a few weeks and threw it away. I’m 9 months past surgery and I may need to rethink a VED and would consider a manual one this time.

BiMix works for me but seriously interferes with intimacy. I’m using it mostly for exercise and rehab.

Manual stimulation without BiMix results in some amount of erection and almost always an orgasm. We’re trying to make it a part of regaining intimacy but don’t have that figured out yet. I’m on ADT which complicates things and dampens arousal so it’s a struggle.

I’m going to retry daily Cialis and see if I can live with the cold-like side effects.

Good luck on your journey!

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