How long did your doc have you on Tymlos?
If you were on Tymlos, how long were you on it? My doc says she keeps most patients at the full two years, even if there's significant density improvement - if any score is still in osteoporosis range.
But I'm wondering if other doctors feel it's more prudent to save 6-12 months usage as a possible "refresher" in the future, if needed, in case density drops again a decade or so down the road - vs using up the whole 2 allowable 2 years now - then having nothing but bisphosphonates in the toolbox - particularly if patients are on the younger side - '50s/early /60s
Thoughts?
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Hi Karen…please make an appointment with your doctor and have him show you how to properly inject yourself. That’s very important. You want to benefit from Tymlos and not over medicate. If u feel you’ve not injected enough medication and need to add more, at the same time, you can use the same needle but otherwise you need to dispose of a needle after every injection whether you’re injecting a full dose or less. Try to inject at the same time daily and remember that you’ll hear clicks as you’re injecting and the pen will revert back to zero when you’ve injected the full desired amount. I’ve not heard of a needle being broken under the skin so if you’re injecting in the abdomen, grab the skin between your thumb and forefinger, insert the needle then let go and inject. Inject slowly, not aggressively and you will hear 5 clicks if you’re injecting 50 mg, 8 clicks for the full dose, etc. When ur done injecting, pull the pen out slowly, remove the needle and dispose of it. The needle shouldn’t break off under ur skin. Do try to make an appointment with your doctor’s office and have ur doc or a nurse assist you. They really should have done that when you first began Tymlos. There is also step by step instructions that come in the box. I used that until I felt comfortable with the process but my doctor’s nurse instructed me the first time and that was really helpful. Blessings to you on this journey. Rose 🌹
Thank you, Rose. I will make an appointment.
The trial data presented by the manufacturer covered an 18-month period, which suggests to me that they didn't expect it to be used for 24 months. Just a guess.