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Only 53 with severe osteoporosis and about to fearfully take Evenity
Osteoporosis & Bone Health | Last Active: Oct 12 5:42pm | Replies (45)Comment receiving replies
Good to hear. I did two years of Forteo and now 7 years later about to start the Evenity. So hard to find a good "bone doctor". Seems the original Osteoporosis Clinic at St. Pauls is no longer the concentrated team it once was. Very disappointing. Had to do a lot of my own research and advocacy. Diagnosed by Dr. Sutton in February of 2010. Started on Forteo by Dr. Phillips in 2016, after 13 consecutive compression fractures in my spine. Good success with Forteo and then follow up with Raloxifene. Slight decline over time with bone density only able to be measured by the hip. Now to start Evenity for one year and then Prolia as follow up maintenance. Would love to hear from anyone else in this category. 66 years old, very active Nana fighting to stay strong and independent.
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@broken13 there has been frequent discussion here, and with my own doctor, about the risky rebound from Prolia. Some posters are doing just one year of Prolia then transitioning to a bisphosphonate like Reclast or Fosamax. The shorter duration of Prolia apparently (according to McCormick, author of "Great Bones" and many posters on here) helps to reduce the rebound.
My own doctor won't use Prolia at all. It seems people are getting a boost for that one year and then "lock in" gains with a bisphosphonate. I have no personal experience with this and am just repeating the experience of others on Connect for you to investigate further. I went directly to Reclast after Evenity (and Evenity was after Tymlos).