Only 53 with severe osteoporosis and about to fearfully take Evenity

Posted by songbird18 @songbird18, Feb 24 11:24am

I am 53 and just got an awful bone density result. (Spine T score 4.1, hip 3.5). The rheumatologist is going to put me on Evenity for a year but I am so afraid after reading about the dangers of heart attack and stroke. The doctor also told me you can’t get any dental work done, but you never know when you are going to have a tooth emergency. I don’t feel I have a choice but to take it because my bones are so bad and my back is in constant pain. I’m wondering if anyone has been using Evenity and how it has affected them. Thank you!

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I had it for one year with no side effects whatsoever.

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it's great that so many can try evenity and their insurance authorizes it. For some reason, my insurance company allows Forteo and Tymlos, but not Evenity. Hoping that's just due to the drug's relative newness in the market and they may reconsider in another 1-2 years.

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@susanfalcon52

I receive my 10th Evenity injections this week. I haven’t had any side effects other than some fatigue after the first injections.
I was terrified at first, but it’s been uneventful.
As I’ve said on here before, I am now occupied with being terrified of Reclast which I start in May.

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I am so glad that you’ve had no side effects. I, too, am already afraid of the drugs after Evenity and I haven’t even started it yet! I wish we could just do lots of calcium and vitamin d after it and call it a day. Good luck and I hope your next phase goes really well.

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@katwhisperer

it's great that so many can try evenity and their insurance authorizes it. For some reason, my insurance company allows Forteo and Tymlos, but not Evenity. Hoping that's just due to the drug's relative newness in the market and they may reconsider in another 1-2 years.

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Hi katwhisperer,
My insurance is the same, however, they approved the prior authorization for Evenity when my doctor submitted it.

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@susanfalcon52

I receive my 10th Evenity injections this week. I haven’t had any side effects other than some fatigue after the first injections.
I was terrified at first, but it’s been uneventful.
As I’ve said on here before, I am now occupied with being terrified of Reclast which I start in May.

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Me too! Evenity has been uneventful after 9 and I’m only 53 as well

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I’m 53. Chose evenity for same reasons and have had no side effects. Also had a tooth crown a couple months ago while on evenity and also no issues. Hoping my BMD goes up lots.

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Good to hear. I did two years of Forteo and now 7 years later about to start the Evenity. So hard to find a good "bone doctor". Seems the original Osteoporosis Clinic at St. Pauls is no longer the concentrated team it once was. Very disappointing. Had to do a lot of my own research and advocacy. Diagnosed by Dr. Sutton in February of 2010. Started on Forteo by Dr. Phillips in 2016, after 13 consecutive compression fractures in my spine. Good success with Forteo and then follow up with Raloxifene. Slight decline over time with bone density only able to be measured by the hip. Now to start Evenity for one year and then Prolia as follow up maintenance. Would love to hear from anyone else in this category. 66 years old, very active Nana fighting to stay strong and independent.

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@broken13

Good to hear. I did two years of Forteo and now 7 years later about to start the Evenity. So hard to find a good "bone doctor". Seems the original Osteoporosis Clinic at St. Pauls is no longer the concentrated team it once was. Very disappointing. Had to do a lot of my own research and advocacy. Diagnosed by Dr. Sutton in February of 2010. Started on Forteo by Dr. Phillips in 2016, after 13 consecutive compression fractures in my spine. Good success with Forteo and then follow up with Raloxifene. Slight decline over time with bone density only able to be measured by the hip. Now to start Evenity for one year and then Prolia as follow up maintenance. Would love to hear from anyone else in this category. 66 years old, very active Nana fighting to stay strong and independent.

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@broken13 there has been frequent discussion here, and with my own doctor, about the risky rebound from Prolia. Some posters are doing just one year of Prolia then transitioning to a bisphosphonate like Reclast or Fosamax. The shorter duration of Prolia apparently (according to McCormick, author of "Great Bones" and many posters on here) helps to reduce the rebound.

My own doctor won't use Prolia at all. It seems people are getting a boost for that one year and then "lock in" gains with a bisphosphonate. I have no personal experience with this and am just repeating the experience of others on Connect for you to investigate further. I went directly to Reclast after Evenity (and Evenity was after Tymlos).

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It’s wonderful to hear that for the most part, most of you have not had any side effects from Evenity. I completed 2-years of Tymlos in June and because of vacationing had to hold off on Evenity until next week. I was stressed about Tymlos but did well and had 15% gains in my spine and 3.5% in my hips with minimal side effects. Now, I’m feeling that same stress with Evenity but it seems the majority of users have had no issues with it. Good to hear. Thanks for sharing your journey with Evenity ladies. Rose 🌹

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I am about to have my 8th shots of Evenity. Minimal side effects. Pain, swelling and rash at injection site. That was significantly reduced by taking Claritin prior to getting my shots. I am concerned about a follow up drug. I have had a total of 5 years of Reclast off and on over a ten year period. My kidney function is reduced and I worry it is the Reclast. That may leave Prolia as my only option. Anyone else with reduced kidney function due to Reclast or bisphosphates?

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