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@bevmarant

Thank you Colleen. Yes I’m having surgery at University of Penn in Phila, PA. My cousin is a radiation oncologist there and has helped in navigating doctors for my care. I did view the Mayo Clinic video you provided.. Mobilizing from lying to standing will be done rather quickly. While the surgery is rather extensive my cancer is also effecting my urethra so surgery as such is necessary.
Will stay hopeful to make a connection.

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Replies to "Thank you Colleen. Yes I’m having surgery at University of Penn in Phila, PA. My cousin..."

Hi,

I was recently informed that I would need pelvic exenteration surgery by my oncologist at the University of Penn in Philadelphia, PA. I am looking to hear from women who have been through this procedure.

Hi, Bev. I am hoping by now that you have had your surgery. I had total pelvic exenteration here in Tampa, FL at Moffitt Cancer Inst. on Sept. 28th, 2015. I am thus far cancer-free! My vaginal cancer (which was originally Stage I cervical cancer--long story) recurred twice, and necessitated the PE. Like you, my mass had caused obstruction of urine output. In my case, it had wrapped itself around my left ureter and was partially blocking my rectum. I have now been a "double-bagger" for over nine years. My first year was very tough on me emotionally and physically, as I have also had rheumatoid arthritis since 1989. Know that this surgery does not define you! Please let us know how you're doing. Deb