← Return to ED after prostatectomy? Any first hand experiences overcoming it?

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@mtb63

Hey Robert... I had RP (laparoscopic) surgery last August (about 13 months ago)... Was lucky not to require additional treatments as cancer was isolated. Surgery was kind of brutal. Multiple skewers (tools/camera) through core abdominal muscles and cutting and suction (also had complication of previous hernia surgery mesh that was somewhat "in the way"). I was 62 and 3/4 at the time. I had never experienced any form of ED and was very strong in that regard. Got no real assistance in that regard post-surgery. Surgeon basically said - "oh yeah, you won't have erections for a year..." Had to initiate active treatment myself to try to get back on track. Talked with a buddy who went through similar who was super-helpful. My family physician is a friend who was extremely helpful when asked (he had similar ED-creating surgery himself years earlier). So, he prescribed Viagra and/or Cialis - told me to try/experiment - see what worked best for me. Started at about the 9-month mark (should've been sooner I guess - but my primary struggle post-surgery was incontinence - which I have made remarkable strides with, also had a freshly torn A-C ligament in left shoulder - ugh!). Even before drugs, I was getting some nocturnal blood flow - but very partial. Also could create some blood flow without prescription with significant stim. But a far cry from pre-surgery. The scripts have helped somewhat - probably getting me to about 70-75% with significant stim. Like you, I am hopeful for non-drug full return, but it is not there yet (I am not interested in injections or pumps at this point). My family physician told me he had recovery all the way to 3 years out! I also had significant pain along perineum post-surgery - I have even been doing red light therapy almost daily along that track - bought my own light panel (supposed to help cellular recovery at the mitochondrial level). I am determined to recover fully - but it is work. There are some good resources out there - google: "Victoria" "A Touchy Subject" - she has some good discussions, videos, options... I am treating this like any other injury from a "re-hab" perspective - many have taken time and determined effort. Best to you!

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Replies to "Hey Robert... I had RP (laparoscopic) surgery last August (about 13 months ago)... Was lucky not..."

Thank you for your frank and forthcoming response. We post surgery PCa patients are most often left to figure this stuff out for ourselves and few of us are confident and open enough to discuss this sensitive subject. Sexual health is just part of overall health and we have to be courageous enough to discuss it openly.

I’ve watched post surgical ED wreck relationships that were solid. At age 54 one of my friends committed suicide after he couldn’t regain sexual function and his wife divorced him because of lack of intimacy. Another friend of mine and his wife gave up all intimacy a couple years ago and live separate lives together. These stories scare and sadden me and I believe that many couples struggle with intimacy and give up.

I never heard of the website “A touchy subject”. I’ve skimmed through it and will dive deep into the subject. Thanks for telling me about it.

A month after the catheter came out and without any medical guidance I took matters into my own hands trying to wake things up without the benefit of Viagra or Cialis and the results were encouraging. I wish the medical community would be brave enough to suggest that men start with self stimulation to figure out what works just like we had to figure out how things worked when puberty hit. Instead men and their partners are left to believe that one day the “Erection Fairy” will sprinkle pixie dust on our penises and life will go back to normal. As far as I know that never happens.

I like your perspective that some form of self stimulation is just a form of re-hab after an injury. Our nerves were in fact injured. They need to heal and regenerate. None of us should be ashamed that it’s part of the process and it’s up to us to figure out what works. Our partners can help but the responsibility isn’t their job; it’s ours.

Personally I don’t care what it takes, I’m going to beat cancer and regain the intimacy that was lost when I was recovering from surgery, going through radiation, and now struggle with ADT. I continue to make slow but steady progress and do not plan on giving up anytime soon.

Good luck to everyone here struggling with ED while on a journey with PCa.