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Want to connect with others who have had pelvic exenteration surgery

Gynecologic Cancers | Last Active: Nov 23 2:25pm | Replies (16)
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@bevmarant

My surgery is scheduled 10/14.
My cancer is a vaginal wall cancer treated with radiation and chemo initially but I now have reoccurring cancer in same location. Surgery is to remove tumor with intent to get cancer free clear margins. Because of the tissue grafting needed to support the pelvic floor I am unable to sit for 6-8 weeks. I can stand and walk but no sitting. My doctors are a distance from my home. Will likely require lying in a car in some way but wondered if anyone else had a good suggestion.

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Replies to "My surgery is scheduled 10/14. My cancer is a vaginal wall cancer treated with radiation and..."
Colleen Young, Connect Director | @colleenyoung | Oct 4 6:14pm

Hi @bevmarant, you might also be interested in this related discussion:
- Anyone had pelvic exenteration surgery for cervical cancer?
https://connect.mayoclinic.org/discussion/pelvic-exenteration/
I'm also tagging @afowler876 to bring her into the discussion.

Not being able to sit for 6-8 weeks sounds challenging for sure. I wonder if the nursing staff might have some helpful suggestions for you as well. I'd also be interested in hearing how others have transitioned from standing to lying down without issue.

Bev, I agree that hearing from others is priceless. In the meantime, what instructions has the surgical team provided?

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