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Lumbar puncture - my next step in my journey

Neuropathy | Last Active: Oct 11 6:59pm | Replies (23)
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@loriesco

never heard of the treatment. Please keep us posted! get well quickly!

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Replies to "never heard of the treatment. Please keep us posted! get well quickly!"
mayoscout | @mayoscout | Oct 4 2:37pm

Hello,
Well it's more of a procedure than a treatment. They stick a large needle between my L4-L5 and extract spinal fluid and test that for diseases. It's been pretty painful post procedure for me since I had it the other day. My body does not do well with needles in the area so needless to say this procedure caused some major nerve flares.

Thanks for the reply. I will update when we have results.

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mayoscout | @mayoscout | Oct 5 9:46am

Hi @loriesco

The results we negative. So good thing there but it still means than my neurologist has no idea what the underlying cause is after many tests.

I'm frustrated. This procedure caused a massive nerve flare up and I told my wife that with the pain this test had caused we better get an answer. I was sure after all the other tests this one was going to be the one to say "you have XYZ thing"...

I should be happy it was negative I suppose. My neurologist thought (after all the other wrong guesses of his) that I have CIDP and this test would confirm it. He was wrong again.

I'll just lay here in bed in pain all day just thinking about the test results.

The neuro wants to follow up in four months so I have to wait that long to discuss this with him. 🙁

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