Anyone feel short of breath and have feet?

Posted by jchet @jchet, Oct 3 1:40pm

I have SFPN. I have shortness of breath due to heavy feeling in legs and feet…..makes it difficult to walk very far. No pain. Anyone else experiencing the same?

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Yes. I have pain which is worse at night. My shortness of breath is also worse at night. I believe my condition came from Covid because I can’t understand how neuropathy would cause shortness of breath. The neuropathic pain I have is otherworldly but I have weird neurological symptoms as well such as hyper salivating which is suffocating. No idea how it all ties together but it all started after I got Covid. Doctors have ZERO answers for me after 3 years.

REPLY

Hi,
My mother in law has shortness of breath which is tied up her with neuropathy. Neuropathy can affect the major nervous systems which there are two that control the body. With both I have throat constriction among other symptoms from autonomic polyneuropathy which starts affecting my lungs and heart along with peripheral neuropathy which takes care of the things like legs and arms.
Neuropathy is the interaction between nerve and muscle and brain. For me they are corrupted signals from and to the brain and muscles mostly intermittent but some have become permanent. Worst case scenario the heart can stop instantly without warning when the neuropathy decides it wants to. I have found I have no conscious control over the problem. There is no cure or treatment for my neuropathy know to date. I just have to wait it out and hope the heart is the last organ that will be affected. Touch wood the heart is still good to go, so far! I do have an enlarged heart but always new I was big hearted anyway!
To date the worst it has been for me is paralysis when walking, unable to move the feet or legs. Reminiscent of concrete boots! Stopped dead mid stride for a few minutes, left looking and willing my feet and legs to oblige me with moving, felt like a lifetime, but just minutes. No such luck, scariest feeling so far not knowing if I'm ever going to continue moving or was that it for life. Often my left legs fails to step when commanded and the brain knows it sent the signal so continues the momentum of the stride and over I go. Fortunately the brain still learns and it now has the ability to act quickly and catch myself before kissing the ground. I'm curious why it is alway the left leg though.
I'm constantly learning just how invasive neuropathies can be. You know what it is like when the information input into a computer does not resemble what you expected out and you are left pulling your hair out until it is resolved. Same scenario, mayhem and confusion.
Cheers

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@mlee5309

Yes. I have pain which is worse at night. My shortness of breath is also worse at night. I believe my condition came from Covid because I can’t understand how neuropathy would cause shortness of breath. The neuropathic pain I have is otherworldly but I have weird neurological symptoms as well such as hyper salivating which is suffocating. No idea how it all ties together but it all started after I got Covid. Doctors have ZERO answers for me after 3 years.

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I have no shortness of breath when sitting or sleeping….just when I walk 50-100 ft. That’s it. Thanks for your story.

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@cheyne

Hi,
My mother in law has shortness of breath which is tied up her with neuropathy. Neuropathy can affect the major nervous systems which there are two that control the body. With both I have throat constriction among other symptoms from autonomic polyneuropathy which starts affecting my lungs and heart along with peripheral neuropathy which takes care of the things like legs and arms.
Neuropathy is the interaction between nerve and muscle and brain. For me they are corrupted signals from and to the brain and muscles mostly intermittent but some have become permanent. Worst case scenario the heart can stop instantly without warning when the neuropathy decides it wants to. I have found I have no conscious control over the problem. There is no cure or treatment for my neuropathy know to date. I just have to wait it out and hope the heart is the last organ that will be affected. Touch wood the heart is still good to go, so far! I do have an enlarged heart but always new I was big hearted anyway!
To date the worst it has been for me is paralysis when walking, unable to move the feet or legs. Reminiscent of concrete boots! Stopped dead mid stride for a few minutes, left looking and willing my feet and legs to oblige me with moving, felt like a lifetime, but just minutes. No such luck, scariest feeling so far not knowing if I'm ever going to continue moving or was that it for life. Often my left legs fails to step when commanded and the brain knows it sent the signal so continues the momentum of the stride and over I go. Fortunately the brain still learns and it now has the ability to act quickly and catch myself before kissing the ground. I'm curious why it is alway the left leg though.
I'm constantly learning just how invasive neuropathies can be. You know what it is like when the information input into a computer does not resemble what you expected out and you are left pulling your hair out until it is resolved. Same scenario, mayhem and confusion.
Cheers

Jump to this post

Thanks for your story.

REPLY
@cheyne

Hi,
My mother in law has shortness of breath which is tied up her with neuropathy. Neuropathy can affect the major nervous systems which there are two that control the body. With both I have throat constriction among other symptoms from autonomic polyneuropathy which starts affecting my lungs and heart along with peripheral neuropathy which takes care of the things like legs and arms.
Neuropathy is the interaction between nerve and muscle and brain. For me they are corrupted signals from and to the brain and muscles mostly intermittent but some have become permanent. Worst case scenario the heart can stop instantly without warning when the neuropathy decides it wants to. I have found I have no conscious control over the problem. There is no cure or treatment for my neuropathy know to date. I just have to wait it out and hope the heart is the last organ that will be affected. Touch wood the heart is still good to go, so far! I do have an enlarged heart but always new I was big hearted anyway!
To date the worst it has been for me is paralysis when walking, unable to move the feet or legs. Reminiscent of concrete boots! Stopped dead mid stride for a few minutes, left looking and willing my feet and legs to oblige me with moving, felt like a lifetime, but just minutes. No such luck, scariest feeling so far not knowing if I'm ever going to continue moving or was that it for life. Often my left legs fails to step when commanded and the brain knows it sent the signal so continues the momentum of the stride and over I go. Fortunately the brain still learns and it now has the ability to act quickly and catch myself before kissing the ground. I'm curious why it is alway the left leg though.
I'm constantly learning just how invasive neuropathies can be. You know what it is like when the information input into a computer does not resemble what you expected out and you are left pulling your hair out until it is resolved. Same scenario, mayhem and confusion.
Cheers

Jump to this post

I have similar challenges including numbness swollen legs that just love to turn red my journey started with Shingles 8ish yrs ago going to the Dr's did little good except lighten my wallet- a 100 test no answer or we don't know that much about it! Then Covid came along & Of course like many have been given the gift of long Covid! There are days with the
neurological
Problems endless red tingling swollen legs my body doesn't want to move same deal with heavy not listening to command to move I literally force my legs to move dragging them to get up and go- bought a tri pod walking cane for balance do laps around my house its in a circle thru the rooms 10 laps = 330 steps I also do a lot of research read reviews on natural home remedys that seniors use I'm from old school don't run to Dr's for every little thing 1st of all can't afford it wasn't brought up that way I'm 85 yrs do the best I can Blessed that I can still live independently drive my car to take care of my needs have all the heavy supplys delivered! Plus I also have great kids which I try not to infringe upon! Wishing you the best of health & luck GOD BLESS

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I too have had weird things since I had COVID I too have had weird things since I had Covid. ranging from shortness of breath to heart, palpitations, tingling predominantly in my legs, feeling of heaviness and in coordination in my legs at times, intermittent exhaustion, for no reason and wobbliness intermittently. I am not angry at the doctors for not knowing definitively what this is. long Covid is a new phenomenon and most recently I went to a rheumatologist who very compassionately said “COVID does what Covid wants to do” and the best we could do would be to manage symptoms. I have no problem with that. It’s a whole new world post Covid. I can’t get a definitive diagnosis, but after about 10 specialist this behaves something like fiber myalgia, but doesn’t meet this full criteria, small fiber polyneuropathy, but my skin punch biopsy was negative, or Covid. Whatever it is, I’ll make modifications and we’ll do symptom management.

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@robindancer5678

I too have had weird things since I had COVID I too have had weird things since I had Covid. ranging from shortness of breath to heart, palpitations, tingling predominantly in my legs, feeling of heaviness and in coordination in my legs at times, intermittent exhaustion, for no reason and wobbliness intermittently. I am not angry at the doctors for not knowing definitively what this is. long Covid is a new phenomenon and most recently I went to a rheumatologist who very compassionately said “COVID does what Covid wants to do” and the best we could do would be to manage symptoms. I have no problem with that. It’s a whole new world post Covid. I can’t get a definitive diagnosis, but after about 10 specialist this behaves something like fiber myalgia, but doesn’t meet this full criteria, small fiber polyneuropathy, but my skin punch biopsy was negative, or Covid. Whatever it is, I’ll make modifications and we’ll do symptom management.

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Yeesh, I really do have good grammar and know how to spell. I tend to dictate things and Siri does what she wants to do!

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@robindancer5678

I too have had weird things since I had COVID I too have had weird things since I had Covid. ranging from shortness of breath to heart, palpitations, tingling predominantly in my legs, feeling of heaviness and in coordination in my legs at times, intermittent exhaustion, for no reason and wobbliness intermittently. I am not angry at the doctors for not knowing definitively what this is. long Covid is a new phenomenon and most recently I went to a rheumatologist who very compassionately said “COVID does what Covid wants to do” and the best we could do would be to manage symptoms. I have no problem with that. It’s a whole new world post Covid. I can’t get a definitive diagnosis, but after about 10 specialist this behaves something like fiber myalgia, but doesn’t meet this full criteria, small fiber polyneuropathy, but my skin punch biopsy was negative, or Covid. Whatever it is, I’ll make modifications and we’ll do symptom management.

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Thanks for sharing. We have similar symptoms. You’re so right about no conclusive diagnosis. In the meantime we endure the best we can.

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Hi,
Thankfully I have never had Covid and don't expect to ever have it as I still take precautions with masking up. Serves to eliminate extreme sinus problems as well, year around. Can't say I enjoy the mask but it is doing it's job. I don't believe I would survive Covid with a compromised immune system from kidney damage. My health issues all came to light after a life threatening dose of Champylobacta and has been complicated with long term uncontrollable diabetes T2. Apparently serious infections can be the cause of some neuropathies with the obvious T2 helping. Champylobacta is what caused the kidney damage and the ball rolling.
Cheers

REPLY
@mlee5309

Yes. I have pain which is worse at night. My shortness of breath is also worse at night. I believe my condition came from Covid because I can’t understand how neuropathy would cause shortness of breath. The neuropathic pain I have is otherworldly but I have weird neurological symptoms as well such as hyper salivating which is suffocating. No idea how it all ties together but it all started after I got Covid. Doctors have ZERO answers for me after 3 years.

Jump to this post

Agree. All same symptoms started after Covid shots. And also 2 surgeries for stents. Did not have history of any heart problems before Covid shots

REPLY
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